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Staff & Recruitment

KSF Personal Development Planning and Review Process is an ongoing process and integral part of practice. It links to the wide range of organisational and operational support mechanisms in place for staff throughout their career with NHSGGC.  

Induction

On commencing with NHSGGC, when changing roles or when returning from an extended period of absence, staff should receive an effective induction to support them in their role. This will enable objectives to be agreed and a Personal Development Plan to be developed to support their initial learning and application in practice. As such, it forms the initial stage of the ongoing KSF Personal Development Planning and Review process. Induction Portal

Staff Support and Wellbeing

The KSF PDP & Review process is a Person Centred approach. It links to ongoing wellbeing discussions with staff, provides a mechanism to discuss specific supports that staff may require and promotes open conversations for feedback highlighting recognition and appreciation of staff contribution. See the Staff Support and Wellbeing pages, HR Policies and Equality Diversity and Inclusion pages for further info on staff supports. 

Career Development

The ongoing KSF PDP & Review discussions can also be an opportunity to discuss staffs wider career development and to include planning around this. The Career and Development Planning Framework pages are designed to offer a wide range of information to help plan development activities for staffs current post and prepare for future roles as part of a career pathway.

Learning, Education and Training Service

The Learning, Education and Training Service offers a range of development opportunities for all staff from entry into post and throughout the span of their career. From formal qualifications to learning pathways, we will provide you with practical solutions tailored to your needs. This might be by gaining a work based qualification, attending a classroom session (where appropriate) or via digital learning.  

The Learning, Education and Training Catalogue outlines information on the wide range of tutor led and e-Learning courses that are available. Access to digital learning is flexible and resources can be accessed from mobile devices, work or home PCs at any time. You can also get support for learning through the NHSGGC Staff Bursary Scheme.

Organisational Development

The Organisational Development Pages also provide information on a range of interventions tools and resources to support ongoing development and learning including leadership development.

Professional Development

Individual professions will also have a range of resources available to support staffs ongoing professional learning and development.

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Referring a patient to the Genetic Clinic
Referral Guidance
Referring patients with a known clinical diagnosis for genetic testing

Please consider whether you could organise genetic testing yourself. We would be happy to see people with positive results thereafter if this is helpful. Sometimes, this allows relatives to seek genetic testing themselves, without the affected person needing to be seen in Clinical Genetics.

For available tests and referral criteria see the Scottish Genomics Test Directories for Rare and Inherited Disease and Cancer at Scottish Genomic Test Directories – Scottish Strategic Network for Genomic Medicine

Where you are referring a patient who does not have capacity to consent to genetic testing please ensure the relevant power of attorney is in place. Ideally, the person with power of attorney should also attend the appointment.

Where the patient lives distant from the QEUH site, is unable to travel, or has a life-shortening condition, please consider storing a genetic sample, so your patient could be offered a video appointment.

Information on how to send samples for storage and testing is found on our laboratory website Laboratory Genetics – NHSGGC

Referring patients with an uncertain clinical diagnosis for genetic testing

Please include results of all relevant clinical investigations unless these are on GGC clinical portal.

If there are affected relatives, please include as much information as possible, ideally their names, dates of birth and death, and address.

Referring patients planning a family to discuss reproductive options

If a couple have a personal or family history of a confirmed genetic condition, they can be referred to review their reproductive options/eligibility for Pre-Implantation Genetic Testing (PGT). These referrals can be made as for general referrals and will be triaged to the appropriate clinic.

If the couple become pregnant whilst on the waiting list they should contact our appointment team as soon as possible and their appointment may be expedited if appropriate.

Referrals of pregnant patients

If a pregnant couple with a family or personal history of a genetic condition wish to review their options for genetic testing during pregnancy please complete the prenatal referral form –https://forms.office.com/e/cH2vczJBbv. This pathway can also be used to make referrals related to abnormal scan findings. Referrals should be marked as urgent. Any queries about prenatal testing or referrals can be sent to ggc.wosprenatalteam@nhs.scot.

Where the genetic consultation will not alter the plans for this pregnancy, please make that clear in your referral. This will allow us to decide the urgency of the referral.

Referrals for Inherited Cardiac Conditions (ICC) Service

Referrals to the ICC Service are accepted from West of Scotland health boards and can be made via Sci gateway. There are two separate pathways, one for suspected Inherited Cardiac Conditions and one for families affected by sudden cardiac death or out of hospital cardiac arrest. For referrals from ICU after a cardiac arrest with unclear aetiology or suspected ICC, please consider sending a blood sample for DNA storage with the referral. Referrals and reviewed and triaged on a weekly basis. 

More information about Inherited Cardiac Conditions for patients and health care professionals is available though the Network for Inherited Cardiac Conditions Scotland, NICCS www.nn.nhs.scot/niccs/

Information on how to send samples for storage and testing is found on our laboratory website Laboratory Genetics – NHSGGC

Referrals or queries for Cancer Genetics service

Referrals can be sent in the same way as for general referrals but if you are uncertain whether this is required, or want to know whether testing is indicated (which can often be requested by mainstream clinicians), please email the cancer genetics team on ggc.cancer.genetics@nhs.scot 

Referrals or queries from Community Paediatrics
Part 1: Children who should be considered for referral for assessment by a Clinical Geneticist

The chance of identifying a single gene disorder in a child with a neurodevelopmental disorder (NDD) is highest when there is:

  • Moderate or severe global developmental impairment
  • Severe language disorder (including non verbal)
  • Gross motor delay
  • Facial dysmorphism
  • Congenital anomalies
  • Abnormal growth eg microcephaly, macrocephaly, height &/or weight less than -2SD or more than +2SD, asymmetric growth
  • Other significant issues eg deafness, significant visual impairment, epilepsy, movement disorder, endocrine

Children with a NDD and any of the above should be considered for first line developmental screening blood tests to include chromosomal microarray and Fragile X syndrome and referral for assessment and consideration of further investigation by a Clinical Geneticist in one of their clinics where they will be seen and examined in person.

In the absence of any of the above, mild intellectual disability, autism spectrum disorder, ADHD, Tourette syndrome, hypermobility are more likely to be multifactorial with genetic +/- environmental contribution. Family history of other individuals with similar issues +/- mental illness in adulthood could support this. Chance of recurrence is significant but there can be considerable variability. These children do not require assessment by a Clinical Geneticist. The Multifactorial inheritance leaflet might be useful https://www.nhsggc.scot/clinical-genetics/.

Part 2: Referral with chromosomal microarray findings
Neurosusceptibility loci

The most common finding is a loss or gain involving a neurosusceptibility locus. These are associated with variable phenotypes and incomplete penetrance and can be considered as one of the many genetic factors contributing to multifactorial aetiology. There are leaflets available on the Unique Rare Chromosomal and Genetic Disorders website (www.rarechromo.org). Provided a child does not have any of the other issues listed above, with exceptions listed below, the family could be provided with the relevant leaflet and would not need to be referred for assessment by a Clinical Geneticist.

If parents would like to be tested for the variant or to discuss implications for a future pregnancy they can be referred for genetic counselling by a Genetic Counsellor who might offer them a telephone, video or in person appointment. When a neurosusceptibility locus variant is identified in the context of parental consanguinity there would be a higher chance of both parents carrying the variant and homozygous deletion or duplication (potentially with more severe consequences) in a subsequent pregnancy. Please consider referral for genetic counselling in these circumstances.

Exceptions who could be referred for assessment by a Clinical Geneticist include:

  • neurosusceptibility loci associated with specific medical issues
  • 1q21.1 microdeletion
  • 1q21.1 microduplication
  • 7q11.23 duplication (involving ELN)
  • 16p13.11 microduplication (involving MYH11)
  • 17q12 microdeletion (involving HNF1B)
  • neurosusceptibility loci which do not have Unique Disorder guides
  • deletions or duplications involving neurosusceptibility loci which are larger than typical or which overlap but have atypical breakpoints (the laboratory report will state if the deletion/duplication found has atypical features).

Leaflets are available for the following neurosusceptibility loci. These children do not require assessment by a Clinical Geneticist unless they have features listed in Part 1.

  • 2p16.3 (NRXN1) deletion
  • 15q11.2 microdeletion (Breakpoint 1-2)
  • 15q13.3 microdeletion
  • 16p11.2 microdeletion
  • 16p11.2 microduplication
  • 16p12.2 deletion
  • 16p13.11 microdeletion
  • 17q12 microduplication
  • 22q11.2 microduplication
  • 22q11.2 distal deletion syndrome
Variants of uncertain significance

Variants of uncertain significance are reported if they involve a developmental gene or if they are relatively large and involves a number of genes not known to be associated with NDD. In these circumstances there is not enough information available to determine if the copy number variant is relevant or not and therefore parents should not be advised to look on the internet as they are likely to come across irrelevant or misleading information.

In these circumstances further evidence can sometimes be obtained by testing parents for the variant usually via their GP practice or community hub. It is important to note on the request if the parent has neurodevelopmental, physical or health issues similar to their child. There is a patient information leaflet explaining why parental samples are required.

Once the lab has analysed both parents’ samples (if available) they will write their conclusion and issue an amended report. If the variant has been inherited from a parent who appears to be healthy and without evidence of NDD themselves this would suggest the variant is more likely to be benign and the child does not need to be referred for assessment by a Clinical Geneticist unless they meet criteria described in Part 1. Otherwise it is likely the report will suggest referral to Clinical Genetics.

Pathogenic variants

These are either recurrent variants with high penetrance such as 22q11 deletion (DiGeorge), 7q11.23  deletion (Williams), 1p36 deletion, 15q11.2q13 deletion (Prader Willi or Angelman), 15q11.2q13 duplication etc or rare (often unique to the family) variants which are likely to be pathogenic due to their size or involvement of 1 or more known developmental genes.

Please refer these to Clinical Genetics where they will be triaged to be seen either by a Clinical Geneticist or Genetic Counsellor.

Incidental findings

These are pathogenic or likely pathogenic variants which do not appear to explain the child’s phenotype but might have implications for their future health or reproductive risks (eg carrier of a common autosomal recessive disorder or female carrier of an X-linked disorder).

Please refer these patients to Clinical Genetics where they will be triaged to be seen either by a Clinical Geneticist or Genetic Counsellor.

Absence of heterozygosity (AOH)

Detection of AOH is not an indication for referral on its own however if the child fulfils any of the criteria in Part 1 they could be referred for assessment by a Clinical Geneticist.

Part 3: Children diagnosed with a single gene disorder

Any child who is suspected or has been identified as having a genetic disorder caused by variants in a single gene either clinically or on genetic or biochemical testing can be referred to Clinical Genetics where they will be triaged to be seen usually by a Clinical Geneticist for the initial appointment and for family follow up by a Genetic Counsellor thereafter if indicated. Single gene disorders might include Fragile X syndrome, Neurofibromatosis type 1, Rett syndrome, Tuberous Sclerosis Complex. Some metabolic or neurological disorders might require referral to Paediatric Neurology, Metabolic or another clinic for management of their symptoms but Clinical Genetics can coordinate referral and follow up of multisystem disorders and provide genetic counselling to parents and the wider family if required.

Fragile X results

Any child (male or female) found to have a full expansion in the FMR1 gene can be referred to Clinical Genetics.

If a premutation is identified, though it is unlikely to explain the child’s NDD, the child can be referred to assess if further investigations are indicated and to arrange genetic counselling for parents and the wider family.

If an FMR1 intermediate allele is identified it does not explain the child’s NDD and you might wish to refer them for assessment by a Clinical Geneticist if they fulfil criteria outlined in Part 1. There is a specific leaflet explaining implications of this finding mainly for future generations. If family members wish to be seen to discuss these they can be referred to Clinical Genetics where they will be contacted by a Genetic Counsellor.

Part 4: Advice regarding investigations, referrals or interpretation of results.

Please contact the Clinical Geneticist who runs your local Clinical Genetics clinic. If the need for a reply is urgent please contact ggc.genetics.referrals@nhs.scot where your query will be directed to the Duty Doctor for the day.

Referring unaffected children for genetic testing

We would usually offer testing to children when there is a family history of a condition that affects children during childhood.

Genetic testing is often only possible where there has been a gene variant identified in someone in the family, or where there is a living affected individual who can be tested.

Please provide the name, date of birth and address of the person with the gene variant, and or ask your patient to seek a copy of the genetic test report.

We would not usually offer genetic testing to children for adult onset conditions, and suggest they are advised to seek referral when they are adults.

Referring unaffected adults for predictive genetic testing based upon a family history

Genetic testing is often only possible where there has been a gene variant identified in someone in the family, or where there is a living affected individual who can be tested.

Please provide the name, date of birth and address of the person with the gene variant, and or ask your patient to seek a copy of the genetic test report.

If there is no known familial gene variant and all the affected people with that condition are now deceased, then it is unlikely that we could offer a genetic test to relatives.

However, for conditions such as cancer and cardiac conditions, even if genetic testing cannot be offered, the patient can be seen to evaluate their risk and for guidance on clinical screening.

How to make a referral

Please read the guidance above for the specific referral type before making a referral.

Health professionals can make an outpatient referral to Clinical Genetics via:

  • Sci Gateway
  • Post: Clinical Genetics, Level 2, Laboratory Medicine Building. QEUH, Govan Road, Glasgow, G51 4TF
  • Email: ggc.genetics.referrals@nhs.scot

Key information to include in the referral:

The details (name and D.O.B) of any related individuals who are already known to our service.

If the family have an existing reference number (e.g. 01234) please include this.

A way for us to contact YOU (the referrer) about the referral (ideally an e-mail address).

Please check that the patient’s phone number is correct.

How to confirm your referral has been received

Our genetic appointments do not show on TRAK. Patients will usually receive an acknowledgement letter upon receipt of their referral.

Please note that appointment waiting times vary between clinics, with some currently having waiting times of 1 to 2 years.

If you wish to check the status of a referral please contact the appointments team- ggc.genetics.referrals@nhs.scot

Patients NOT likely to need a referral
Cystic Fibrosis

Cystic Fibrosis (CF) is an autosomal recessive condition (https://www.genomicseducation.hee.nhs.uk/genotes/knowledge-hub/autosomal-recessive-inheritance/) with an estimated prevalence of ~1 in 3,000.  The most common associated complications are chronic lung disease, exocrine pancreatic insufficiency and male infertility.  It is estimated that ~1 in 20 to 1 in 25 of us are carriers of CF.  Being a carrier of CF is not expected to have any implications for your health, but it may have reproductive implications if both partners are found to carry CF variants.

Referral to Clinical Genetics:

We no longer see patients for CF carrier testing in the genetics clinic, unless there are additional concerns.  A couple who are both carriers of CF can be referred to Clinical Genetics if they are family planning and would like to discuss reproductive risks and options (e.g. preimplantation genetic testing and prenatal testing). If a patient has a family history of CF and is pregnant, they should be referred to Clinical Genetics to review their options.

Requesting CF Carrier Testing:

Non-genetic specialists (including GPs) can request CF carrier testing (5-10ml EDTA sample, sent to the Genetics lab).  It is imperative to state the name and details of the patient’s known affected relative. Further information on how to arrange carrier testing and interpretation of results can be found in this document – Cystic Fibrosis information sheet for GPs (link) or in the Scottish Genomic test directory ( NSD611-003.20-SSNGM-Test-Directory-Rare-Inherited-Disease-V5.pdf)

Genetic test request form can be found here: https://www.nhsggc.scot/downloads/routine-genetic-testing-request-form-2/. Alternatively, testing can be requested on Trakcare in ‘Lab – Adult’ using the request item ‘Germline molecular genetic analysis or storage’. Within the request, for ‘Testing Required’, select ‘Cystic Fibrosis/CFTR related condition’.  If ordering electronically please make sure to include the information about the relative known to be affected/a carrier as outlined above, as well as our reference/pedigree number if known.

Haemoglobinopathies

Haemoglobinopathies are a group of inherited blood conditions caused by alterations in the genes that produce haemoglobin. Haemoglobin is the substance inside our red blood cells which picks up oxygen as blood passes through the lungs and carries it to the rest of the body. How an individual is affected by a haemoglobinopathy condition can vary, with some conditions causes mild to moderate anaemia and others causing significant health issues, such as sickle cell anaemia and beta thalassemia major. Typically haemoglobinopathies are inherited in an autosomal recessive pattern (https://www.genomicseducation.hee.nhs.uk/genotes/knowledge-hub/autosomal-recessive-inheritance/). Carriers of alterations in the haemoglobin genes are typically well and do not experience and health problems because of being a carrier.

Genetics clinic referrals:

We no longer see carriers of haemoglobinopathies in the genetics clinic, unless a couple are both carriers of a haemoglobinopathy and are family planning. These couples can be referred to Clinical Genetics to review their reproductive risks and options.

Requesting haemoglobinopathy screening:

Non-genetic specialists (including GPs) can request a haemoglobinopathy screen which is a haematological blood test that can determine haemoglobinopathy carrier status. Testing can be requested via TrakCare and a 4ml EDTA (purple topped) sample should be collected.

If a patient is found to be a carrier of a haemoglobinopathy condition and they are considering pregnancy testing should also be arranged for their partner. As above, carrier couples can be referred to Clinical Genetics.

Further information about haemoglobinopathies can be found at – https://www.gov.uk/government/publications/handbook-for-sickle-cell-and-thalassaemia-screening/understanding-haemoglobinopathies.

Hereditary Haemochromatosis

We do not routinely see patients for Haemochromatosis diagnostic or carrier testing in the genetics clinic, unless there are additional concerns. 

Requesting Genetic Testing

Non-genetic specialists (including GPs) can request haemochromatosis carrier testing (5-10ml EDTA sample, sent to Laboratory Genetics). Guidance for testing and management of Haemochromatosis have been produced by the British Society for Haematology (BSH).

Acceptance criteria must be met and stated on the request form (see  The Scottish Genomic test directory, NSD611-003.20-SSNGM-Test-Directory-Rare-Inherited-Disease-V5.pdf)

Genetic test request form can be found here: https://www.nhsggc.scot/downloads/routine-genetic-testing-request-form-2/

*Before requesting this test, please check clinical portal to ensure that the patient has not been tested before. The results of these genetic tests will not change over time, and so repetition is of no value.

Non-healthcare professionals are not permitted to request genetic testing.

Hereditary Haemochromatosis information for clinicians

Haemochromatosis is a common inherited condition that affects how the body absorbs iron from your diet. It is more common in those with Northern European ancestry. 

Individuals with hereditary haemochromatosis experience a slow build-up of iron in the body over a number of years. Too much iron in the body is known as iron overload.  The excess iron can be stored in organs and tissues and lead to symptoms such as fatigue, joint pain, abdominal pain, shortness of breath and weight loss.  The condition can also affect the organs in the body such as the pancreas and the liver, which can lead to diabetes, liver cirrhosis, arthritis, cardiac problems and skin discolouration.

Treatments can include iron monitoring, chelation therapy, venesection to remove blood and reduce iron levels and changes to diet and lifestyle.

The genetics of Hereditary Haemochromatosis

Haemochromatosis is caused by variants in a gene called HFE gene.  We all have two copies of this gene as we inherit one from each of our parents.  For an individual to be affected with hereditary haemochromatosis, they must have alterations on both copies of the HFE gene. Carriers have an alteration on only one of their copies of the HFE gene. Therefore, for an individual to be affected by the condition, both parents must be carriers.

When both parents are carriers of Hereditary Haemochromatosis, in every pregnancy there is a:

  • 1 in 4 (25%) chance of having a baby who is not affected and not a carrier
  • 2 in 4 (50%) chance of having a baby who is a healthy carrier
  • 1 in 4 (25%) chance of having a baby who is affected by the condition

This is known as autosomal recessive inheritance.

Genetic testing for Hereditary Haemochromatosis 

Individuals who meet the testing criteria outlined the Scottish Genomic test directory (link can be found on the website) or who have a first-degree family member who is known to carry an HFE variant can have genetic testing arranged by non-genetics specialists (including GPs). Testing requires a 5-10ml EDTA sample sent to Laboratory Genetics with a genetic test request form (see website for link). Testing covers common alterations C282Y and H63D.

Genetic test results interpretation

No Variants detected

If a patient’s results showed they do not have the C282Y or H63D alterations in the HFE gene they are not likely to have hereditary haemochromatosis. We would not offer any further genetic testing or clinical follow up. If an individual is experiencing iron overload symptoms they should be investigated and treated as appropriate, but these are not likely to be caused by hereditary haemochromatosis.

Heterozygous for C282Y or H63D

If a patient has been found to be a carrier of HFE-related haemochromatosis they have an alteration on one copy of their HFE gene. Carriers of the condition are generally well and are unaffected with the condition. To be affected an individual must have genetic alterations on both their copies of the HFE gene, which leads to iron overload.

As carriers are generally well, they do not require any treatment or follow up therefore there is no further genetic testing that we would offer to your patient. If an individual is experiencing iron overload symptoms they should be investigated and treated as appropriate. However, these symptoms are not likely to be caused by HFE-carrier status.

Homozygous C282Y

Individuals who are found to be homozygous for the C282Y alteration in the HFE gene are generally affected by haemochromatosis and experience iron overload. Symptoms can be variable but generally include fatigue, joint paint, abdominal pain and weight loss. If left untreated it can lead to worsening symptoms including liver disease and diabetes. If an individual has raised iron levels, they should be referred to gastroenterology for management and follow up (see full management guidelines via link on website).

Compound Heterozygous C282Y/H63D

Individuals who are found to be compound heterozygous for the C282Y and H63D alterations in the HFE gene can experience iron overload. However, iron overload in these individuals happens at a slower rate than those homozygous for C282Y. Individuals can experience symptoms but are at a lower risk of serious complications such as organ failure. If ferritin and transferrin saturations levels are normal it is recommended that individuals have these check every 3 years. This can be done through the GP. If levels are raised individuals should be referred to Gastroenterology for management and follow up. 

Homozygous H63D

Individuals who are found to be homozygous for the H63D alteration in the HFE gene are unlikely to experience iron overload. Some individuals can experience iron overload and should have any symptoms investigated. This result does not confirm or exclude a diagnosis of haemochromatosis. If homozygous individuals do not have a raised iron level regular iron monitoring is not required. Genetic testing is not recommended for family members of homozygous individuals who do not have symptoms.

Implications for children

Testing Children – Carriers

If a patient is a carrier of haemochromatosis (heterozygous for H63D or C282Y) any children have a 1 in 2 (50%) chance of also being a carrier. Genetic testing can be carried out from the age of 16 via the GP practice. As mentioned, Carriers are generally well and do not experience any symptoms. If both parents are carriers there is a 1 in 4 (25%) chance any children will be affected. If any children are found to be affected, they should be referred to gastroenterology for follow up and management.

Testing Children – Affected

If a patient is affected with haemochromatosis any children that they have will be a carrier of the condition. This is because affected individuals have alterations in both copies of their HFE gene. We always pass on one copy of each of our genes to our children, so children of affected individuals will always inherit an altered copy of the HFE gene making them a carrier of haemochromatosis. If an affected individual’s partner is a carrier of haemochromatosis there is a 1 in 2 (50%) chance any children will be affected with the condition. Children can be tested from the age of 16 through their GP practice. If they are found to be affected, they should be referred to gastroenterology for management and follow up.

Implications for first degree family members

Parents and siblings of individuals who are carriers or affected by Hereditary Haemochromatosis can request genetic testing via their GP to clarify their carrier status. Partners of individuals who are affected or carriers can also seek testing via the GP. Results interpretation and management guidance as above.

Reproductive implications

If an individual is affected with Hereditary Haemochromatosis and their partner is a carrier, there is a 1 in 2 chance any children they have will be affected by the condition. If their partner is not a carrier any children, they have will all be carriers of the condition. Since Hereditary Haemochromatosis is an adult-onset condition with a number of management options genetic testing during pregnancy (prenatal testing) is unlikely to be offered. See above section about testing children.

If a couple are both carriers of Hereditary Haemochromatosis any children have a 1 in 4 chance of being affected and a 1 in 2 chance of being a carrier. As above prenatal testing is unlikely to be offered, and children can consider testing from the age of 16 via their GP.

Patient resources

Further information for patients can be found at the following links:

Further useful information about the condition can be found via the NHS Conditions website: Haemochromatosis – NHS (www.nhs.uk)

Hypermobile Ehler’s Danlos Syndrome

Hypermobile Ehler’s Danlos Syndrome is characterised by hypermobile joints, widespread musculoskeletal pain and other symptoms. It is a clinical diagnosis which does not require referral to Rheumatology or Clinical Genetics. It is a multifactorial condition and there is no diagnostic genetic test available.

A GP toolkit (links below) initially produced by the Royal College of GPs, provides information on diagnosis and management. The toolkit outlines the rare circumstances in which patients should be referred to Clinical Genetics.  

Some additional resources are listed below.

GP Toolkit on diagnosis and referral guidance

Information for professionals on classical EDS, with useful clinical photographs www.ncbi.nlm.nih.gov/books/NBK1244/

Patient and family support group www.ehlers-danlos.org

NHS Inform hypermobility information for patients www.nhsinform.scot/illnesses-and-conditions/muscle-bone-and-joints/conditions-that-can-affect-multiple-parts-of-the-body/joint-hypermobility

Information for patients on multifactorial inheritance

Alpha-1 Antitrypsin Deficiency

Alpha-1 antitrypsin deficiency (A1ATD) is an inherited condition caused by variants in the SERPINA1 gene. It is inherited in an autosomal recessive manner. A1ATD is associated with an increased risk of lung disease (particularly emphysema) and liver disease, although the clinical presentation is highly variable. Carriers are usually healthy, although some carrier genotypes may be associated with a modest increase in the risk of lung or liver disease. Smoking significantly increases the risk of lung disease and should be avoided.

Referral to Clinical Genetics: We no longer see patients for A1ATD carrier testing in the genetics clinic, unless there are additional concerns. Individuals with a family history of A1ATD who wish to clarify their carrier status can arrange testing through their GP.

Requesting A1ATD testing: Non-genetic specialists (including GPs) can request A1ATD testing. Please send a 5–10ml EDTA sample to your local laboratory, requesting alpha-1 antitrypsin studies and include details of the family history (i.e. who is the affected relative and their phenotype if known). Results are generally reported using Pi (protease inhibitor) nomenclature, for example:

• PIMM – usual genotype
• PIMZ, PIMS, PISS – carrier genotypes
• PISZ, PIZZ – genotypes associated with alpha-1 antitrypsin deficiency

Carriers should be advised to avoid smoking, as smoking increases the risk of lung disease. If the patient is considering having children, their reproductive partner can also be offered carrier testing through their GP. If both partners are found to be A1ATD carriers, the reproductive risk depends on the specific parental phenotypes. Clinical Genetics referral can be considered to discuss the specific results and reproductive implications.

If the patient is found to have a phenotype associated with A1ATD, appropriate clinical assessment should be considered, including assessment for respiratory and/or liver disease. Management guidance is available through the relevant respiratory/hepatology services and current clinical guidance: https://bestpractice.bmj.com/topics/en-gb/1075/management-approach

Requesting Genetic Testing

For available tests and referral criteria see the Scottish Genomics Test Directories for Rare and Inherited Disease and Cancer at Scottish Genomic Test Directories – Scottish Strategic Network for Genomic Medicine

Information on how to send samples for storage and testing is found on our laboratory website Laboratory Genetics – NHSGGC

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Below are the approved Minutes of Meetings of Area Partnership Forum Workforce & Strategy meetings from November 2024 onwards. To access Minutes of Meetings prior to November 2024, please contact the APF Administrator at kirstin.mckenzie@nhs.scot.

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    How to Engage with Staff Side,
    Area Partnership Forum
    and Templates
    Corporate Staff Partnership Forum
    Minutes of
    APF Meetings
    (Workforce & Strategy)
    Area Partnership Forum Meeting Dates 2026
    Web Links
    and
    Contacts

    The Area Partnership Forum (APF) serves as a pivotal platform for collaborative decision-making and strategic planning within NHS Greater Glasgow and Clyde.

    Its primary role is where the NHS Board and 15 recognised Trade Union and Professional Organisations work together to improve health services for the population of Greater Glasgow and Clyde, and to engage in negotiations with the aspiration of making NHSGGC an exemplar employer.

    The Area Partnership Forum will be a powerful enabling force to:

    • Inform thinking around priorities on health issues.
    • Inform and test delivery and implementation plans in relation to national strategies.
    • Advise on workforce planning and development.
    • Advise on the delivery of the staff governance legislation.
    • Promote equality and diversity.
    • Promote and Engage in Partnership Working.

    Providing a structured environment for dialogue, the Forum ensures that all voices are heard and contributing to the formulation of policies that reflect the collective interests of the community. The remit of the Area Partnership Forum includes identifying priorities, allocating resources effectively, monitoring progress, and evaluating outcomes to ensure continuous improvement. By promoting transparency, accountability, and inclusivity, the Area Partnership Forum plays a crucial role in driving sustainable development, and improving the quality of life for residents within the area.

    Forum meetings are divided between meetings concerned with a broad strategic agenda and those with an agenda constructed around matters more specific to employee relations. Meetings are Co-Chaired by the Chief Executive, Employee Director and the Director of Human Resources and Organisational Development. The Forum provides formal reports to the Staff Governance Committee of the NHS Board.

    The terms of reference for the Area Partnership Forum can be found within the Board Partnership Agreement.

    Prof Jann Gardener
    Chief Executive & APF Strategy Co-Chair
    Portrait image of Ann Cameron-Burns, Employee Director
    Anne Cameron-Burns
    Employee Director & APF Strategy & Workforce Co-Chair
    Staff Placeholder photo of Natalie Smith, Interim Director of Human Resources & Organisational Development at NHSGGC
    Natalie Smith
    Interim Director of Human Resources and Organisational Development & Co-Chair APF Workforce

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    Civility Saves Lives (CSL) is about how we treat each other at work. The CSL campaign aims to promote positive working relationships and raise awareness about how our behaviour with colleagues can have a direct impact on patient care and outcomes, and staff experience and wellbeing.

    It is the responsibility of us all to work together and make conscious decisions about how we behave, so that everyone feels respected, valued, supported and empowered to carry out their work.

    The campaign is grounded in research showing that even small acts of rudeness can significantly impact staff wellbeing, team performance, and patient safety.

    You can contact your local Organisational Development Advisor to discuss or find out a bit more or visit our SharePoint where you can see the list of groups, contacts, Leads, and watch information videos and download copies of posters.

    You can also find more information and read the FAQs.

    World Kindness Day (13 November)

    This year, NHSGGC is celebrating World Kindness Day on Thursday 13 November!

    We encourage you to get involved on the day, either by visiting stalls or attending events at your site (more information coming soon!), celebrating with colleagues, or even just making time for a cup of tea and a chat.

    Visit the World Kindness Day page for more information, six-week challenge activities, and the chance to nominate your colleagues to be recognised on the day.

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    This year the Chair, Dr Lesley Thomson KC, presented the Chair’s Awards of Excellence which recognise outstanding achievement, expertise and dedication in patient care. As with all our awards, they celebrate the incredible efforts of our wonderful staff.

    The Celebrating Success Event was held on Wednesday 28th May 2025.

    The winners were announced live on the night on our social media channels (follow the #ggcawards tag).

    You can find out who the winners were and also view their photos and videos below.

    Congratulations to all our winners!

    Chair Award of Excellence Winner – The Fetal-Genetics Group at the Queen Elizabeth University Hospital

    The Fetal-Genetics Group at the Queen Elizabeth University Hospital has been established to improve the experience for patients and families planning or undergoing a pregnancy where there is a known family history of a genetic condition and/or pregnancy loss.

    The Fetal-Genetics Group combines the skills of Consultant Obstetricians, Specialist Midwives, Consultant Geneticists, Genetic Counsellors and Clinical Scientists to provide a truly multi-disciplinary approach that allows the most appropriate support and information and any genetic testing to be made available to this group of patients at the earliest opportunity and throughout their pregnancy and beyond.

    Chief Executive Award of Excellence Winner – Scottish Epilepsy Register

    The Scottish Epilepsy Register has been developed under the leadership of NHSGGC Consultant Neurologist Dr Craig Heath and Johnathan Todd, Head of Information Management. Epilepsy is one of the most common neurological conditions, with an estimated 55,000 people living with it in Scotland. The Scottish Epilepsy Register uses routine health data, collected via a clinical dashboard, to provide an alert to healthcare professionals following a key adverse event. Its main aim is to reduce excessive mortality and morbidity in epilepsy and to improve access to care and outcomes in people living with the condition. 

    As part of the project, key pieces of clinical information are collected from other health boards which will be used to create a Scottish National Audit Programme for Epilepsy, allowing trends and outcomes to be tracked and monitored. Once fully established, the methodology could be applied to other chronic neurological diseases to improve disease recognition and management.

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    The William Cullen Prize for Excellence In Teaching and the William Cullen Prize for Service Innovation are awarded in collaboration with the Royal College of Physicians in Edinburgh.

    The Celebrating Success Event was held on 28th May 2025.

    The winners were announced live on the night on our social media channels (follow the #ggcawards tag).

    You can find out who the winners were and also view their photos and videos below.

    Congratulations to all our winners!

    William Cullen Prize for Innovation Winner – Red Star Fracture Liaison Service based in the South Sector, led by Dr Maria Talla

    The Fracture Liaison Service (FLS) aims to identify and treat patients over the age of 50 who have sustained a fragility fracture, and refer them for an assessment of their bone health in order to reduce their risk of subsequent fractures.

    Dr Talla and her team have partnered with RedStar to develop a web-based clinician dashboard system known as RedStar FLS.

    The dashboard has significantly reduced the time it takes for the Fracture Liaison Service to identify a patient who has had a fragility fracture, from an average of 15 months to 3 days. This allows prompt assessment and treatment initiation. An automated audit tool has been built into the dashboard and shows that the NHS GGC South Sector FLS is outperforming national FLS standards across the UK.

    William Cullen Prize for Education Winner – Intensive Care Medicine in the Glasgow Royal Infirmary

    Over the last year, this department has demonstrated an excellent profile in training all grades of doctors, from Foundation to Specialty resident doctors, and has been recognised in providing this in the Scottish Trainee Survey.

    The department led by Dr Barbara Miles and her team performs well in many domains, and in particular in important areas such as induction and handover, creating a positive educational environment that is clearly appreciated by the doctors who work there.  There is a focus on learning through weekly MDT simulation scenarios and structured learning is provided in weekly education slots on site that can also be accessed remotely.

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    Our dedicated teams and individuals were nominated for the prestigious NHSGGC Excellence Awards by patients, visitors and staff. All of our staff have gone above and beyond in the past year and we asked to hear about your experience of outstanding care and for your nominations.

    There are 7 categories in our Excellence Awards and the winners were announced at the Celebrating Success Event on 28 May 2025.

    The winners were announced live on the night on our social media channels (follow the #ggcawards tag).

    You can find out who the Gold Winners were, read about the Silver Winners who were shortlisted, and also view photos and videos in each of the categories below.

    Congratulations to all our winners!

    Better Care

    This award recognises staff who provide and contribute towards incredible patient care improving everyday practices across NHSGGC.

    Nominees

    Cancer Older People’s service

    The Cancer Older Peoples Service at the Beatson has successfully established and implemented a comprehensive Occupational Therapy service which is specifically designed to support older cancer patients. It is the only service of its kind in Scotland and uses targeted interventions to significantly improve functional outcomes for patients, as well as supporting their health and wellbeing. The team also concentrates on ensuring safe discharge for patients from hospital, and the best ways to avoid unnecessary hospital admissions. They will undertake a thorough assessment of a patient’s physical, psychological, and social needs, while also incorporating age-specific screenings and interventions into routine cancer care. 

    Evaluation has shown positive improvements in clinical outcomes, patient satisfaction, and overall cost-effectiveness, with clear areas identified for further growth. The team is currently in discussion with other cancer centres across the country to share its framework, which has proven to be a highly transferable model. 

    Charley Mcdowall – Transition clinic within Inverclyde CAMHS

    Charley is a specialist mental health nurse working in the Child and Adolescent Mental Health Service in Inverclyde. She spearheaded the development of a dedicated ‘transition’ clinic for older adolescents after identifying a gap in care for this group. Previously, those aged 17 or over who were waiting for assessment and/or treatment were frequently transition to adult services when they turned 18. The new clinic provides immediate access, assessment and treatment for young people aged 17 years and 6 months and older. 

    This initiative has provided timely access to care and treatment for mental health concerns, and has facilitated further assessments and exploration of diagnoses such as autism spectrum disorder and attention deficit hyperactivity disorder, as well as cognitive difficulties. The results have been overwhelmingly positive, including improved mental health outcomes for young people, prevention of deterioration, timely neurodevelopmental diagnoses and treatment, and a reduction in referrals to adult mental health services.  

    Hannah Grant, Advanced Practice Dietetic Led Coeliac Service NHSGGC 

    Hannah has successfully transitioned the Coeliac Disease service from a consultant-led to a Dietetic Led Coeliac Service, marking a significant advancement in patient care. This initiative addresses the lifelong management of Coeliac Disease, which requires the strict elimination of gluten from the diet. Over the past two years, Hannah has implemented a streamlined process ensuring timely access to diagnosis and dietary interventions for all patients, significantly reducing over 300 unnecessary biopsies.  

    The service prioritises patient-centred care by allowing dietitians to manage all referrals from primary and secondary care, ensuring that medical colleagues can focus on the most critical cases. This innovative model not only enhances patient care but also optimises resource utilisation within the healthcare system.  

    What makes this service truly special is its status as the first dietitian-led clinical pathway in adult gastroenterology at scale. Hannah’s evidence-based approach has revolutionised the treatment of Coeliac Disease, demonstrating the essential role of dietitians in gastrointestinal management and improving patient outcomes through dietary changes. 

    QEUH Fetal-Genetics Group  

    The aim of the Fetal-Genetics Group team at the Queen Elizabeth University Hospital was to change the clinical experience for patients and families planning or undergoing a pregnancy where there is a known family history of a genetic condition and/or pregnancy loss. When a routine ultrasound scan shows some fetal anomalies that may be due to a genetic cause, this can result in a period of worry and distress for the patient/couple until more information is available, so time is of the essence to either reassure the patient/couple or equip them with the appropriate information to help them make informed choices about their pregnancy and/or postnatal care. 

    The Fetal-Genetics Group combines the skills of Consultant Obstetricians, Specialist Midwives, Consultant Geneticists, Genetic Counsellors and Clinical Scientists to provide a truly multi-disciplinary approach that allows the most appropriate support and information and any genetic testing to be made available to this group of patients at the earliest opportunity and throughout their pregnancy and beyond. 

    Scottish Epilepsy Register 

    The Scottish Epilepsy Register has been developed under the leadership of NHSGGC Consultant Neurologist Dr Craig Heath and Johnathan Todd, Head of Information Management. Epilepsy is one of the most common neurological conditions, with an estimated 55,000 people living with it in Scotland. The Scottish Epilepsy Register uses routine health data, collected via a clinical dashboard, to provide an alert to healthcare professionals following a key adverse event. Its main aim is to reduce excessive mortality and morbidity in epilepsy and to improve access to care and outcomes in people living with the condition.  

    As part of the project, key pieces of clinical information are collected from other health boards which will be used to create a Scottish National Audit Programme for Epilepsy, allowing trends and outcomes to be tracked and monitored. Once fully established, the methodology could be applied to other chronic neurological diseases to improve disease recognition and management. 

    Better Health

    This award commends staff who have implemented an initiative to improve the health and wellbeing of patients, the public and/or staff.

    Nominees

    Pain Management Service

    The Pain Management Service has recognised for a long time, significant health inequalities and barriers to access for patients with communication support needs. For non-English-speaking patients, language barriers often create significant challenges when navigating the healthcare system. This is particularly true in specialised services like pain management, where understanding treatment options and communication with healthcare providers is critical for successful outcomes.  

    The service made it their priority to break down these barriers and improve accessibility, ensuring that every patient has the support they need, in the language they understand. To help achieve this and informed by patient and staff feedback, the team launched a number of initiatives from revision of patient materials to incorporating pain management into interpreter training. 

    The result has been a whole system approach bringing better accessibility for patients for whom English is not their first language and greater engagement with healthcare services, and as well as enhancing the patient experience the initiative has also strengthened the clinical team. 

    Gillian Harvey, Health Improvement Lead (Acute)  

    Gillian has been instrumental in addressing health inequalities through her leadership of the Support and Information Services (SIS) team at NHSGGC hospitals. She spearheaded crucial initiatives like the Emergency Food on Discharge program, ensuring that no patient leaves the hospital without food. These programs are now core services, sustained despite budget constraints. 

    Gillian also developed the Home Energy Crisis Response Service, which helps patients safely return to warm homes—a vital component in preventing delayed discharges. Her team actively engages with vulnerable populations, offering financial advice and support to those facing poverty. In 2023-24, SIS facilitated 3,762 referrals to financial inclusion services, resulting in over £4.5 million in financial gains for patients.  

    Gillian’s exceptional leadership has fostered a motivated SIS team that provides holistic support, ensuring that patients receive the assistance they need while navigating the challenges of the cost of living. Her commitment to tackling health inequalities is both impactful and inspiring, making her a deserving nominee for this award. 

    The Apple Clinic: prehab into rehab – Clyde 

    The Apple Clinic is a multidisciplinary team covering the Clyde sector, with the shared aim of getting patients in the best physical and mental health before, during and after their surgery. The team provides prehabilitation-into-rehabilitation and have been running the clinic for nearly 10 years and have seen between 500-600 patients. They assess each surgical patient and refer them for exercise and physical activity at either their own exercise classes, or to community partners, local charities or private services.  

    Physiotherapists Mhairi and Louise Crookston run the Inverclyde Royal Hospital Apple Clinic. They run weekly group circuit classes for patients awaiting surgery, which family members can join to provide support. The clinic has been transforming the surgical department by engaging nurses and Allied Health Professionals trained in exercise, health advice and cognitive behavioural therapy, all of which has reduced complications, shortened hospital stays and improved post-surgical recovery for patients.  

    Better Value

    This award is for staff who have increased efficiencies taking a new approach to work making better use of resources.

    Nominees

    North West Primary Care – Zendesk  

    Zendesk aimed to streamline community pharmacy queries to enhance patient care in the North West of Glasgow City. Utilising the platform, community pharmacies submitted queries online rather than by phone, allowing for quicker and more efficient handling. Key objectives included routing queries to appropriate pharmacy team members, reducing administrative workload in GP practices, and improving turnaround time for medication-related issues.  

    Launched in November 2024, the system handled 435 queries in two months, with 81% resolved by Pharmacy Support Workers, thereby freeing up over 60 hours of pharmacist capacity for face-to-face patient care. The initiative not only saved staffing costs—almost £850 in eight weeks—but also provided self-help resources for community pharmacies.  

    With expectations to handle over 15,000 queries annually, the project is set to release nearly 2,100 hours of pharmacist time and achieve annual savings of approximately £31,000. This innovative use of IT to direct workload enhances service efficiency and patient safety. 

    NHSGGC Biorepository

    NHS Greater Glasgow and Clyde’s Biorepository is the first in the UK to achieve accreditation to ISO20387:2018, the new biobanking standard. It was awarded this by the United Kingdom Accreditation Service (UKAS), the UK’s national accreditation body, becoming only the eight biobank in the world to achieve this. There have been many improvements to the Biorepository’s quality processes and this has improved the service it provides to academic and commercial researchers, supporting their world leading medical research with access to surplus diagnosis tissue and blood.   

    Accreditation against an ISO standard is a key indicator of high-quality processes and technical competence in the handling and storage of tissues used for research activities. 

    The Biorepository, based on the Queen Elizabeth University Hospital campus, stores and provides access to a wide range of human tissue for use in valuable medical research into a range of diseases.   

    Dry Mouth/Sjogrens Multi-disciplinary clinic at Glasgow Dental Hospital 

    The clinic was set up in 2024 to provide a one-stop service for patients with symptoms of Sjogrens disease. Sjogrens is an autoimmune disorder with an increased lifetime risk of lymphoma development, and its diagnosis involves a range of investigations previously undertaken over three appointments. 

    By establishing the clinic – the first of its kind in Scotland – Consultants in Oral Medicine and Dental Radiology have enabled all the necessary investigations to be undertaken in a single appointment, allowing patients with negative results to be discharged to their general dental practitioner after one visit and patients with confirmed Sjogrens to have their cases managed more efficiently. 

    In the first six months of operation, this new approach saw 30% of patients seen by the clinic discharged after their initial visit, saving around 60 future appointments with Dental Radiology and Oral Medicine. The effect of patient experience has been positive too, and in local questionnaires, every patient has appreciated this more streamlined approach. 

    Better Workplace

    This award recognises the often unseen work of our staff who help make NHSGGC a better workplace, improving the culture and supporting colleagues.

    Nominees

    GGC Allied Health Professions Practice Education Team  

    The GGC Allied Health Professions (AHP) Practice Education Team aimed to enhance the educational experience for students and AHP staff within NHSGGC by implementing a multi-dimensional education programme. The AHP Director prioritises an inclusive education strategic framework for 12 healthcare professions, including AHP Health Care Support Workers (HCSW), ensuring access to innovative learning opportunities for the current and future workforce.  

    The Practice Education Team has played a pivotal role over the past two years by collaborating with key partners, improving communication, and designing new AHP educational opportunities. Their efforts have raised the profile of AHPs, transformed NHSGGC’s educational offerings, and supported career development for staff and students. 

    Key deliverables include enhancing practice-based learning placements, developing a funded modular programme in collaboration with Glasgow Caledonian University, and supporting HCSW workforce development through flexible programmes. The team also plays a vital role in staff support during the recovery renewal period, leading initiatives like the Return to Practice programme and promoting clinical skills through simulation.  

    Their commitment to education governance and service improvement significantly contributes to the overall wellbeing and professional growth within NHSGGC. 

    Internationally Educated Nurses Oversight Group  

    The Internationally Educated Nurses Oversight Group aimed to enhance recruitment, professional governance, and pastoral care for Internationally Educated Nurses (IENs) joining NHSGGC. By facilitating discussions among multi-disciplinary professionals, the group streamlined support for IENs addressing key concerns like visa processes, accommodation, and education. Members included Human Resources, Senior Nursing Managers, and Practice Education, ensuring collaborative efforts to foster a positive working environment and address IENs’ needs.  

    The group’s success is reflected in several impactful initiatives: the creation of a welcoming NHSGGC handbook, improved collaboration with Higher Education Institutions for upskilling, regular staff presentations to address IEN challenges, and the introduction of a ‘My Nurses Life’ workbook. Additionally, a dedicated website for IENs was launched, alongside the first-ever ‘Welcome to the UK Workforce’ workshops held in Scotland.  

    In 2023-24, NHSGGC became the leading board in Scotland for employing IENs, successfully adapting strategies based on feedback from the previous cohort. This comprehensive approach not only enhanced integration but also cultivated a culturally aware and psychologically safe environment for IENs. 

    Stacey Kavanagh – Nurse Team Lead, South alcohol and drug delivery service in Pollok  

    Stacey is a manager who has created a workplace that is not only comfortable but also supportive and inclusive for everyone. She consistently looks out for her colleagues, offering guidance, encouragement, and a listening ear, and has created a team where everyone feels valued.  

    She ensures that all work progresses smoothly, addressing challenges proactively and stepping in to help when difficulties arise, while she actively encourages and supports team members in their professional growth, providing mentorship and opportunities to learn and advance. 

    This approach has fostered a positive, inclusive and efficient work environment and ensures her team feels supported, motivated, and well-equipped to handle both day-to-day tasks and challenging situations. 

    As a result, the team has seen improved efficiency and productivity, while there has been a noticeable improvement in staff retention. Numerous team members have expressed their appreciation for Stacey’s leadership, approachability, support and commitment to fairness, and have noted an increase in job satisfaction as a result. 

    Nursing and Midwifery Council (NMC) Referrals Database (Rob) 

    The aim of the project was to redesign the NHSGGC database and governance process for NMC referrals, enhancing data protection and confidentiality while improving communication channels. Identifying risks in the previous system, Michelle Murray-Moore undertook training to explore innovative IT solutions that would streamline information sharing within the NMC referral process. Collaborating with Tracy Donaldson, they developed a user-friendly database with effective reporting functionalities and key document templates.  

    The success of the new system has been recognised by senior nursing and midwifery managers and the NMC Regulatory Adviser, highlighting several benefits: a robust governance process, a clear single point of contact, user-friendliness, and flexibility for future adaptations.  

    This initiative has remarkably improved NMC referral management, fostering transparency and maintaining confidentiality for staff under investigation. It has significantly enhanced efficiency, enabling the NHSGGC team to respond promptly to NMC and service colleague requests and freeing up resources for other important workstreams within the Directorate. This impactful achievement exemplifies innovation and dedication to excellence in healthcare governance. 

    Global Citizenship

    This award recognises staff who have travelled overseas to provide healthcare and/or education in developing countries or countries in crisis.

    Nominees

    Breast cancer care in Gaza

    Breast Cancer Advanced Nurse Practitioner Gerry O’Hare and Dr Abdulla Alhasso, a Consultant Clinical Oncologist, bring a combined 20 years of experience in supporting cancer care in Palestine, with a particular focus on breast cancer in Gaza. Breast cancer outcomes for women in Gaza are significantly worse when compared to neighbouring countries and international benchmarks. Gerry and Abdulla have undertaken regular visits to Gaza over the past five years, which has been done in their own time and with the support of the Medical Aid for Palestinian organisation.  

    They collaborate with healthcare professionals in Gaza to enhance the clinical outcomes for women diagnosed with breast cancer by improving both their diagnosis and treatments. The pair also participate in weekly online multidisciplinary meetings with Palestinian colleagues to discuss optimal care for women presenting with early and advanced breast cancer, while also navigating the extremely challenging local circumstances.   

    Professor Sameer Zuberi – Paediatric Neurosciences Unit, Royal Hospital for Children  

    Professor Zuberi is a committed advocate for epilepsy care in children across at a national, European and global level. He is an active participant in international research, and his work has helped in improving the diagnosis, treatment and care of children with epilepsy, improving their quality of life and allowing them to achieve their potential in life, education and future career.  

    He makes regular use of vCreate, a technology by which parents send video clips to clinicians who can advise, in real time, on the significance of an event that worries parents and also helping make a diagnosis in difficult cases of epilepsy 

    He has chaired the European Paediatric Neurology Association and played an important role in the twinning of the Royal Hospital for Children with the Children’s Hospital in Karachi, Pakistan. He had helped to foster links with and training and support for neurologists in Ukraine as well as supporting efforts to train and educate colleagues working in Palestine and Gaza. 

    Dr Mark McAuley GP Partner Regent Gardens Medical Practice Kirkintilloch, Assistant Director of General Practice for West of Scotland (NHS Education Scotland)  

    Dr McAuley, a partner at Regent Gardens Medical Practice for over 25 years, and Assistant Director of General Practice for West of Scotland (NHS Education Scotland), has demonstrated exceptional commitment to both his local community and global health initiatives.  

    He has volunteered with Freedom from Torture for over 11 years, where he provides medicolegal assessments for survivors of torture, ensuring their human rights are upheld through rehabilitation support. His extensive training allows him to document the physical and psychological effects of torture, aiding asylum seekers and refugees in rebuilding their lives.  

    In addition, he has contributed to the development of primary care in India through his ongoing partnership with CMC Vellore. He conducted a successful training workshop in October 2022, which spurred further engagement and recognition at international conferences. As a PRIME tutor, he has also visited Albania multiple times to enhance family medicine training.  

    His selfless dedication to these global initiatives while providing exemplary care to his local patients makes him a deserving nominee.  

    Nursing and Midwifery

    This award recognises nurse(s) who demonstrate the best qualities of patient care and the ethos of nursing.

    Nominees

    Brachytherapy Nursing Team

    Nurses on the Beatson’s B3 ward are a highly specialised team helping to care for women with gynaecological cancers. They deliver brachytherapy, a type of radiotherapy that gives radiation inside the body and run the only nurse-led service in Scotland for women who require this treatment. The nurses pre-assess and examine patients and insert the necessary cylinders to allow patients to receive high dose radiation within a specialised unit.  

    This is a regional service for patients attending for sealed and unsealed sources of treatment. Melanie Whyte, Senior Charge Nurse, has been instrumental in helping to develop and implement the necessary protocols, safety advice and training for nurses in the unit. Patient feedback has confirmed patients attending the unit are happy with the service, and turnaround time has improved service delivery while also taking a huge time commitment away from Senior Consultants who previously carried out these treatments. 

    Susan Hunt, Professional Nurse Lead GPN/ANP  

    Susan was closely involved in efforts to enhance excellence in care within NHSGGC by supporting trainee Advanced Nurse Practitioners (ANPs) in developing the knowledge, skills and competencies required for advanced practice. In collaboration with NHSGGC Advanced Practice corporate team and Glasgow Caledonian University (GCU), she developed and delivered a hugely successful work-based Masters-level learning module to support trainee ANPs to reach the level of extended practice expected of them.  

    The module is facilitated by Susan and trainees are given a safe space to discuss individual clinical cases which allows for open discussion and joint learning, as well as facilitating peer support and engagement. Her ability to engage trainees on a personal level helped the trainees navigate the complexities of their new roles, providing reassurance and guidance, and ensuring they felt valued and supported.  

    Around 120 staff have competed this module and have gone onto work as ANPs. The result is a stronger, more skilled ANP workforce, improving patient care and making a lasting difference in primary and community healthcare services. 

    Tissue Viability Team (Dykebar)  

    The Tissue Viability Nursing Team at NHSGGC, a cohesive group of 10 nurses, is dedicated to supporting patients with complex wounds, receiving up to 850 referrals monthly. Renowned for their expertise, this team implements innovative, person-centred initiatives that enhance care while effectively using resources.  

    One key initiative focused on reducing unnecessary documentation, which previously consumed up to three hours per shift. They developed an ABCD system that emphaises meaningful record-keeping and effective communication. Additionally, they transformed patient repositioning practices by moving away from ritualistic two-hour checks, allowing for more personalised care that improves patient comfort and nursing efficiency. This approach, supported by evidence from case reviews and focus groups, has led to significant time savings and better patient outcomes.  

    The team enhances education through engaging workshops, utilising games such as wound care bingo and interactive quizzes to facilitate learning. Their efforts have gained international recognition, influencing wound care practices across the UK and beyond, and have been published in peer-reviewed journals, showcasing their commitment to advancing wound care.  

    Volunteer

    Recognising people who go the extra mile contributing tirelessly and providing outstanding help and support for the benefit of others.

    Nominees

    Morag Brierton, RAH volunteer

    Morag is NHS Greater Glasgow and Clyde’s longest serving volunteer in acute services, having volunteered with the organisation for over 15 years. She is a Volunteer Driver for the Royal Alexandra Hospital Health at Heart team and transports patients to and from the hospital for cardiac rehab exercise classes in the Health at Heart gym. Within the service, patients also receive physiotherapy, education sessions, practical advice and emotional support, helping to rebuild their confidence and come to terms with a range of different heart conditions. 

    Transport within and around Renfrewshire to the hospital can be challenging, particularly for patients living in semi-rural areas. But Morag’s vital support helps break down barriers for patients – many of whom are older and at risk of isolation – in accessing the rehab programme. They enjoy spending time with Morag in the car having a chat, and she builds strong relationships with them over the weeks she is picking them up and taking them home.  

    The Growing Spaces Garden Volunteers – Gartnavel  

    The value of greenspace to our health and wellbeing is well documented, and the Garden Volunteer team are central to NHSGGC’s efforts to offer multi-purpose spaces in nature, where patients, staff and the general public can find a place to relax, meet friends or simply have a moment of peace.  

    The volunteers work throughout the year to maintain the garden spaces at Gartnavel, and thanks to their skills and foresight, they have developed a donation stall on which are offered plants for visitors and participants who use the gardens. This helps sustain the current infrastructure as the garden has no allocated budget. Surplus produce and cut flowers are shared with patients and staff throughout the campus. 

    They are the welcoming face of our Growing Spaces and work with a range of third sector organisations, as well as staff and patient groups, to share and promote the benefits of our greenspaces. They are always looking to improve their work and will happily act on suggestions, attracting positive feedback from those who visit the gardens. 

    Queen Elizabeth University Hospital – Volunteer Welcome Guides (10-year anniversary)  

    When the Queen Elizabeth University Hospital opened to the public in spring 2015, a team of 100 volunteers were recruited to be the friendly faces people needed when arriving at one of the largest acute hospital campuses in Europe. Ten years later, 30 of those 100 people are still actively serving as welcome guides, marking a decade of commitment.  

    The volunteers come from a diverse range of backgrounds and include former patients, NHS employees and aspiring medical students, as well as a 91-year-old participant which is truly inspiring. This long-term dedication and diverse experience undoubtedly contribute significantly to the welcoming and supportive atmosphere.  

    The welcome guides play a vital role in supporting patients, families and visitors and helping to alleviate stress. By dedicating on average 150 hours per week, they ensure a positive experience for those entering the hospital and help to guide individuals to their desired destinations.  

    gold and silver stars

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