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Obsessive compulsive disorder (OCD) is a common anxiety disorder which is thought to affect approximately 2 in 100 people in the population.

  • An obsession is an unwanted and unpleasant thought, image or urge that repeatedly enters your mind, causing feelings of anxiety, disgust or unease.
  • A compulsion is a repetitive behaviour or mental act that you feel you need to carry out to try to temporarily relieve the unpleasant feelings brought on by the obsessive thought.

Many people experience thoughts that they don’t like or don’t understand from time to time. For example, when holding a small animal you might have an image or thought about holding it too tight injuring it, you might think about what would happen if you drove onto the wrong side of the road or said something inappropriate in an important meeting. These thoughts don’t normally mean you actually want to embarrass or hurt yourself and the thoughts normally go away on their own. 

If you have OCD these thoughts cause lots of anxiety and they can be extremely difficult to ignore. You might find that you spend lots of time worrying about what your thoughts mean. You might also complete behaviours to try and stop your feelings of anxiety.

Not everyone who experiences obsessions will have compulsive behaviours but often compulsive behaviours are very subtle and feel like a natural reaction to obsessive thoughts. You might perform a behaviour that seems unrelated to your original worry, for example repeating a certain word or phrase to yourself to “neutralise” a thought.

Superstitious thinking

Often people with OCD can feel that thinking about certain things makes them more likely to happen. For example, you might worry that you shouldn’t think about an accident happening in case you feel responsible for it. This is called superstitions or magical thinking.

Imagine you were asked to think about someone you love and complete the sentence below by entering their name and then signing and dating it.

You would likely be very unhappy doing this and might refuse to do the task altogether. You might feel that you are “tempting fate” and would feel a terrible sense of responsibility if something happened to your loved one.

But does writing something on a piece of paper make it more likely to happen? What if you were asked to fill in this sentence?

Would you be able to claim part of the prize money if they won? Could you take them to court and demand money back? You would likely find it easier to fill in the second example than the first but the truth is you can’t control the world with your thoughts.

Below is a table of some common obsessions and compulsions:

Below are some links to questionnaires which assess whether you might have obsessive compulsive disorder

Do I Have OCD? – OCD Action 

OCD Self-Assessment – Anxieties.com

This diagram shows how your thoughts and feelings can lead to unhelpful behaviours and how these behaviours then make the thoughts worse.

Hoarding- although it is not always related to OCD, some people also have difficulties with hoarding. You might be having difficulties with hoarding if you find it very difficult to throw things away and end up with lots of things stored in a very chaotic way.

More Information

What helps

The two most evidenced treatments currently for OCD are:

  • Medication – usually a type of antidepressant medication that can help by altering the balance of chemicals in your brain.
  • Talking therapy – usually a type of therapy called Cognitive Behavioural Therapy (or CBT) which helps you to change your thoughts, feelings and behaviours

Although lots of people benefit from psychological therapy alone, others combine medication and psychological therapy or only take medication.

If you are concerned that you may have OCD it is a good idea to meet with your GP who can guide you towards helpful services in your area.

Further information on treatment options for OCD is available at NHS Choices

There are a number of useful books and self-help materials available to help if you have OCD some of which are listed below:

Books

Break Free from OCDOvercoming Obsessive Compulsive Disorder with CBT (2011) by Dr Fiona Callacombe and Dr Victoria Bream Oldfield

Overcoming Obsessive Compulsive Disorder: A self-help guide using Cognitive Behavioural Techniques (2009) by David Veale and Rob Wilson  

Or

Stop Obsessing! How to Overcome your Obsessions and Compulsions (1991) by Edna B. Foa and Reid Wilson

There is growing popularity and the beginning of evidence to support another approach using mindfulness techniques. This can be used to complement other treatment approaches and is described in:

Mindfulness Workbook for OCD: A guide to overcoming obsessions and compulsions using mindfulness and cognitive behavioural therapy (2014) by Jon Hershfield and Tom Corboy

These are available to purchase on the internet and in bookshops.A good local library should also be able to lend you these books.

Websites

There are also very useful resources on the web which you can access:

What would a self-help programme involve?

If you choose to follow a psychological self-help programme, instead of, or alongside medication, here is an idea of the kind of approach you can expect.

You may be asked to think about how, when and why your difficulties started

For example,

  • Can you remember when they first started?
  • Were they a problem early on or did they only become a problem after a while?
  • Can you think what might have led to you developing a problem with obsessions and/or compulsions?
  • Did something happen around the time when you started to notice that they were becoming a problem? (this is sometimes called a ‘trigger’)
  • Why do you think they have not got better by themselves?

You may be interested to know that…

  • Some people with OCD have family members who have also had obsessions and/or compulsions- this could point to a genetic element, or it could be that it suggests we learn behaviours from those around us
  • Sometimes the problem becomes more noticeable at times of change, for example when leaving home or having a first child
  • Some people with OCD have an exaggerated sense of personal responsibility. For instance, they believe that if something bad happens they will personally be completely to blame for it, rather than there being many causes to most events.
  • Some people who have checking compulsions believe that they have a poor memory, and therefore need to check their actions many times over. In fact, there is no evidence that people with OCD have poorer memories than anyone else. However, they do often have less confidence in their memory, for example having a recurring thought or belief that ‘My memory can’t be trusted’. You may want to reflect on how to build confidence in your memory, and we will look at this further in a later section.

Take a moment to reflect on how the above may apply to you

My understanding of how my OCD Developed

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It is not necessary to find a cause for your OCD in order to change, but sometimes it can be helpful to think about how it has developed.

You may be asked to think about what is keeping your OCD going.

‘In CBT we believe that OCD continues because the strategies you may be using to try to tackle it are actually having the opposite effect’

If you check or repeat a ritual after an obsessive thought or image, you experience immediate relief from the distress or anxiety which the thought or image has caused. This can make you believe that your checking or ritual is working. So you want to keep using that method of making your anxiety go away. The problem with this strategy is that the relief from the anxiety does not last long. As soon as the obsession returns, the checking or ritual has to begin again. So not only the obsessions but also the compulsions and rituals become part of the problem.

Therefore the answer has to lie in finding a different response to the original distressing thought or image.

Take the example of a mother who lies awake at night, constantly with the image that she may inadvertently harm her children. She has never harmed anyone in her life and takes good care of her children who mean the world to her. This thought is completely out of character, yet she fears that it means something bad could happen to her children, or even that she could be responsible for it. Her strategy to cope with this is to make sure she stays awake to block out the thoughts and images, or she focuses on a spot on the ceiling to take her mind off her obsessions.

This might seem like common sense – of course, a mother would want to put any thoughts of her children coming to harm out of her mind. However what we know is that if we put a lot of effort into trying to block out thoughts, unfortunately, this can have the opposite effect.

Try this experiment:

Firstly, bring to mind a large pink caterpillar. Now I would like you to try very hard not to think of one.

What happened? Most people find that they can’t get the picture out of their head of a large pink caterpillar.

You can try this experiment with any intrusive thoughts or obsession that you may have. On Monday, Tuesday and Wednesday, try your hardest not to think about them. On Thursday, Friday and Saturday put less effort into not thinking about them. See what happens on each day. Does trying not to think about them make them less frequent or less distressing? Or more so?

Another important point is that most people experience upsetting thoughts at some point, such as the mother described above. These can include thoughts about harming others, behaving in a sexually or morally reproachable way, becoming critically ill, catching germs, leaving a door unlocked, or the gas turned on. The difference is that most people are able to dismiss these thoughts quickly, they do not dwell on them, neither do they put enormous energy into pushing them away or ‘neutralising’ them. They do not consider that these thoughts mean anything about them as a person, about other people, or about their environment as a potentially dangerous place.

Accepting thoughts as ‘just thoughts’ is key to overcoming OCD. If you can accept your thoughts and let them pass in their own time, neither dwelling on them, nor pushing them away you will take away the power they have over you. ‘Here you are, again, familiar thought’, you can say to yourself, ‘Or here you are again, my OCD’. No need to judge yourself, or the thought. No need to do anything special with the thought. Allow it to come into your mind, like a guest at your table, take a seat, and then leave in its own time. It may be the guest you never wanted, an uninvited guest, but just allowing it to be, and giving it no special attention, can, with practice, allow it quietly to leave of its own accord. Over time you will have a new strategy for managing OCD.

Take a moment to reflect on your thoughts or experiences trying out these strategies

Video courtesy of OCD-UK www.OCDUK.org

What else is involved in a CBT or self-help approach to OCD?

There are many elements to a full treatment of CBT for OCD. Considering the nature of your difficulties, how they have evolved over time, the meaning they have for you, and how you have tried to cope up until now are some of those elements. Another key aspect which you will find described in recommended treatments (eg NICE and SIGN Guidelines) is called ‘Exposure and Response Prevention’ or ERP.

What is ERP and how does it work?

‘Exposure’ means that in the treatment you are exposed to the anxiety you experience which is linked to your obsession. This is done in a gradual way.

‘Response Prevention’ means that you prevent yourself from dealing with your anxiety in your usual way- through your compulsions. So you prevent yourself from responding as normal, and instead let yourself feel the anxiety, and gradually learn that your anxiety will reduce over time even when you do not perform your rituals.

Depending on the nature, number and severity of your obsessions and/or compulsions, you may be successful using a self-help approach, or together with a therapist, they will tailor a unique intervention for you so that you can derive maximum benefit from treatment.

To follow a full self-help programme using an evidence-based model, we recommend you return to the list of recommended books and websites towards the beginning of this section.

If you feel you need the help of a therapist, please contact your GP in the first instance.

There is information at the bottom of this page if you require URGENT HELP

Living with…Obsessive Compulsive Disorder

If you have OCD it is likely that you spend time trying to avoid thinking about difficult thoughts that trigger your symptoms. For example you might:

  • Avoid certain situations or places
  • Ask other people for reassurance
  • Be on the constant lookout for worrying thoughts
  • Try very hard to block out certain thoughts or urges.

Although you might feel some relief from your anxiety symptoms when you engage in these behaviours, they actually make your OCD symptoms worse in the longer term. If you think back you might find that when your OCD difficulties started they were related to one or two specific thoughts or situations but over time have spread to other areas of your life.

This diagram shows how your behaviour might help in the short term but actually make things harder in the longer term. This is because acting like your worries are true makes them harder to ignore in the future.

You may be interested in reading some personal accounts of living with OCD: The following are books by two people with OCD:

The Man Who Couldn’t Stop: The Truth about OCD (2015) by David Adam

Because We are Bad: OCD and a Girl Lost in Thought (2016) by Lily Bailey

There are also detailed personal accounts at:

Find out more
Looking after someone with…Obsessive Compulsive Disorder

Information for spouses, partners and families

A recent article (Gomes et al 2014) has explored how those who live with a person with OCD can find themselves changing their behaviour to ‘work around’ the OCD. This has been called ‘family accommodation’ (FA). It includes things like providing reassurance, waiting for the person to complete their rituals, not doing or saying anything, tolerating the OCD behaviours, modifying their routine or the family’s routine, and participating in the compulsions. If the person you live with has decided they want to change, and try some self-help strategies or seek treatment, it seems to be important that those living with them also understand the principles of the treatment, for example exposure and response prevention, for the treatment to be as effective as it can be. It is important for family members to be as emotionally supportive and encouraging as they can be to someone who is trying to overcome their OCD, without helping to accommodate the obsessions or compulsions.

Therefore family members of those trying to change would do well to also familiarise themselves with the principles and aims of CBT for OCD.

There are also books written for those who live with someone with OCD:

Loving Someone with OCD: Help for You and Your Family (2014) by Karen J. Landsman

When a Family Member has OCD (2016) by Jon Hershfield

Spouses, partners and families can also find valuable information and support from the following websites:

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site

Real life stories

My real life experience by Sandy Nisbet

In my battle with OCD, one moment in particular stands out to me. It was a Friday night in March 2012, and I was in the study, playing a Professor Layton game. It might seem like a regular moment, but I remember it fondly. For most people, this day would have been a cause for despair. My OCD had got so severe that I had just dropped out of university. I had just had my first meeting with a psychologist. Even playing a relatively tame video game had taken a huge amount of willpower, as my OCD left very little room in my head for anything else aside from horrible thoughts and unfounded worry. But as I sat there solving puzzles, I suddenly noticed the light at the end of the tunnel, however faint. I don’t know if the tunnel had become unblocked or I had just never noticed the light before, but I caught a fleeting glimpse of it and realised, you know what? I might have a chance of beating this after all.

My OCD took a form often labelled Pure-O – obsessions without overt compulsions. I never washed hands or checked door locks excessively. In fact my OCD never had “actions” at all. Instead, my head was full of horrible thoughts that made me sick with worry. Every moral fibre in my body cried out against these thoughts, but despite this (or perhaps you could say because of this) the thoughts become more prevalent, more detailed, more abhorrent to me. Pure-O can take a few forms, but for me, involved violent thoughts – thoughts of me attacking other people. These would never leave my head, despite how much I detested them. Now when I tell my story, this is normally the part where people take a couple of steps back. But let me explain. Despite how scary these thoughts sound, these thoughts, intrusive thoughts, are thoughts that everyone has. For most people, they are shrugged off as a random misfire of the brain (and rightly so). But Pure-O sufferers react with alarm. Where did that thought come from? Does this mean something about me? Am I an evil person? Could I act on these thoughts? These questions will ring a bell to most Pure-O sufferers. And like all OCD sufferers, they will have compulsions to attempt to get rid of these thoughts. I tried to rationalise against them, and figure out where they were coming from. But attempting to stop them only led to them getting stronger, as I gave them “negative importance”. As my OCD got worse, I lost three stones in weight in three months, I was getting as little as 45 minutes sleep a night, and it got to a point where leaving the house caused a huge amount of anxiety due to the thoughts that would trigger every time I walked past someone. It was a huge issue.

My OCD began in my final year of university – I was a Computer Science student. I had stayed on to do a Masters, and there was a lot less work to do than the previous hectic Honours year. This left my brain with more time to ruminate, and all it took was one intrusive thought to set off my OCD like a match in a flour mill. My degeneration was surprisingly fast, so I quickly went to my doctor to get to the bottom of it. While not diagnosing me with OCD, he was very understanding and sent me to the community mental health unit for a more expert opinion. There, over a number of generally unhelpful meetings, I was misdiagnosed, underdiagnosed and anything in-between. At one point I specifically asked if I had OCD, but told that as I “had no compulsions”, it wasn’t OCD. I was finally diagnosed with OCD by a clinical psychologist, three months after seeking help, and was put on the waiting list for cognitive behavioural therapy (CBT). It was at this point I was at my absolute lowest. I had been seeing a number of student and charity counsellors who were determined to treat me for depression, even after I got my diagnosis and explained depression wasn’t the issue. Frustrated by the waiting list and a lack of progress with the counsellors, I reached out to a private therapist. This was the turning point in my battle. She was gentle and understanding, and after a joint meeting with her and my mum, we decided dropping out of uni was the right choice. I already had a graduate job starting in four months, and my university had very graciously agreed to put forward an appeal for my degree. So I made the risky choice of leaving university, and started therapy.

While working with my therapist and the psychologist, I came to a better understanding of what these thoughts were – meaningless, and no indication of my character.  Through a variety of exposure exercises designed to trigger the thoughts – such as doing DIY, gardening and cooking – I learned through practice that these thoughts led to nothing. I began to rediscover joy in the simple things, often even more that I had before. Things, such as having a meal with my family, that OCD previously sucked the happiness out of. I had lived without them for a while, but now that I could experience them again, I loved them even more.

To my surprise, the university appeal came through, and I got a distinction, alongside an award for the best Masters student! And I started my job, as a software engineer. Six years later, I haven’t looked back. I know whether this is actually possible is a cause of many heated online debates, but I believe I have fully beaten OCD. While I still have intrusive thoughts (as everyone does), I can’t remember the last time I was bothered by them.

If you are fighting OCD, I have no magical cure – CBT is the way to go. But I would give three pieces of advice. The first is this: make sure your family understand what you’re going through. Once my mum understood she was my biggest supporter. If you can’t find the words to explain it yourself, arrange for a joint meeting with a doctor or therapist. Secondly, don’t give up your hobbies. It’s easy to stop pursuing them as OCD takes over your entire being. But fight to reintroduce these things, as they give relief, and help train your brain to think normally again. And when you’re caught up in something you love, you become blissfully unaware of your OCD. Thirdly, find something that makes you laugh. It’s difficult to avoid laughing at something you find funny, even when you’re in a pit. I attribute a fair bit of my recovery to watching old episodes of The Muppet Show, or Vic and Bob. Laughter is a positive emotion that can be hard to control – the perfect counterbalance to OCD.

OCD can be beaten. A full recovery is possible, but even if not, you can still live the life you want to with the right help. Never lose sight of this. It’s easy to think things will never change if you have spent months, even years as a slave to OCD. But they do change, and you can live a happy and rewarding life. As someone at the other side of it all, I can assure you it is a life well worth fighting for.

BSL – Obsessive Compulsive Disorder

NHSGG&C BSL A-Z: Mental Health – Obsessive Compulsive Disorder

Obsessive compulsive disorder (OCD) is a type of anxiety disorder. In this condition, the person suffers from obsessions and/or compulsions that affects their everyday life.

  • An obsession is an unwanted and unpleasant thought, image or urge that repeatedly enters your mind, causing feelings of anxiety, disgust or unease.
  • A compulsion is a repetitive behaviour or mental act that you feel you need to carry out to try to temporarily relieve the unpleasant feelings brought on by the obsessive thought.

If you have OCD these thoughts cause lots of anxiety and they can be extremely difficult to ignore. You might find that you spend lots of time worrying about what your thoughts mean. You might also complete behaviours to try and stop your feelings of anxiety.

Not everyone who experiences obsessions will have compulsive behaviours but often compulsive behaviours are very subtle and feel like a natural reaction to obsessive thoughts. You might perform a behaviour that seems unrelated to your original worry, for example repeating a certain word or phrase to yourself to “neutralise” a thought.

Some people can only suffer from obsessions, whilst others suffer from a mixture of both obsessions and compulsions.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde.

Are you having trouble sleeping?

Many people experience sleep difficulties at some time in their lives. In fact, it is normal to feel that sometimes you have not slept well. It might be that you felt it has taken a long time to fall asleep or maybe you felt you tossed and turned all night.  A familiar feeling that can leave us feeling a bit tired and worn out the next day.

For some people, this experience of poor sleep or dissatisfaction with their sleep can last a long time. Sometimes people might describe themselves or their partner as having insomnia.  Let’s have a closer look at what would be considered a normal sleep pattern and when we might consider someone to have a problem with sleep or insomnia.  In addition, we will take a brief look at some other medical conditions that can cause sleep disruption. If you think you might have any one of these conditions, you should contact your GP.

More Information

What is normal sleep?

Individuals vary greatly in terms of how much sleep they need however as a general rule, there are patterns that fluctuate as we age. The amount of sleep we need in general reduces as we get older and the typical adult sleeps between 7-8 hours per night and then in later life, sleep can become less consolidated at night time and on average older adults sleep for 6-6 ½ hours per night with some napping throughout the day.

So, we now know that on average, all being well, an adult should be sleeping for approximately 7-8 hours per day. Let’s look at what happens during that time asleep. Using specialist equipment that measures brain and muscle activity, researchers and scientists have been able to identify sleep cycles that are made up of 5 distinct stages of sleep; stages 1 to 4 and rapid eye movement (REM) sleep. A sleep cycle will last between 90 and 110 minutes and we tend to go through 4 to 5 sleep cycles per night.

What is insomnia?

So far we have been looking at what sleep is but what about when we don’t sleep. What is going on?

Occasional sleep disturbance is common and quite a normal experience familiar to us all. Everyone experiences difficulty getting to sleep or staying asleep at some time in their lives. This often occurs at times of change or times of stress. These problems usually sort themselves out and end up being short-lived, and once the stressor goes, so do the sleep problems. However, we know from studies that examine the occurrence of insomnia in the population, that about 10% of adults, that is 1 in 10 people, experience persistent sleep problems, and this can be as high as 1 in 5 (20%) in people over 65 years of age.

A widely accepted definition is supplied by the American Sleep Disorders Association (ASDA, 1997):

Insomnia is a condition where you have problems getting to sleep or staying asleep for 3 or more nights per week and persisting for at least 6 months. There might also be daytime mood and performance effects.

Source: based on the revised International Classification of Sleep Disorders, ASDA, 1997

People with insomnia often experience:

  • Difficulty falling asleep
  • Difficulty staying asleep
  • Frequent nighttime awakenings
  • Feeling very tired the next day.

The definition from the latest Diagnostic and Statistical Manual (American Psychiatric Society) is similar: this is the manual used by clinicians and researchers to diagnose and classify mental disorders. In the fifth edition, published in May 2013 (DSM-5), insomnia disorder is defined as a combination of both dissatisfaction with sleep and a significant negative impact on daytime functioning.

Dissatisfaction with sleep is further defined as difficulty initiating and/or maintaining sleep or non-restorative sleep, on at least three nights per week for at least 3 months, despite adequate opportunity to sleep. Negative daytime impacts can include significant fatigue, sleepiness, poor concentration, low mood, or impaired ability to perform social, occupational or caregiving responsibilities.

If you are interested in finding out more about your sleep difficulties NHS Choices has more information

Sleep Problems, Insomnia and other Sleep Disorders

Some insomnia is a natural consequence of a stressful period in a person’s life or leading up to a stressful event such as a job interview or making a presentation. Usually, once these events pass, sleep returns to normal.

On occasion, poor sleep can continue, and this can start a cycle where a person starts to worry about not sleeping. This can result in anxiety that makes it even more difficult to get to sleep or stay asleep. The more you worry, the harder it is to sleep.

So there are different drivers to Insomnia. Some are to do with how we cope with stressful situations, and others are to do with worry about the Insomnia itself.

Sleep Disorders other than insomnia

When talking about Insomnia, we are not talking about medical conditions that cause sleep problems. Advice should be sought from a medical practitioner in such cases. There are different types of sleep problems, and these are described below:

Circadian Disorder

Delayed sleep phase syndrome –this involves the experience of staying awake until late at night with problems initiating sleep and with waking in the morning. People with this feel sleepy even when waking at normal rising times, and feel that they sleep better when they go to bed late and get out of bed later in the morning.

Advanced sleep phase syndrome –this involves the experience of feeling sleepy in the evening and finding it difficult to stay awake until a normal bedtime. Typically people experience early morning wakening and sleep better when they go to bed very early and get up out of bed very early.

Sleep-related breathing disorder

Obstructive sleep apnoea – commonly snoring loudly, breathing can be irregular or have ‘pauses’, and sleep is broken with periods of brief wakening. People with this often experience feeling sleepy during the daytime and might have difficulty with low mood. This breathing problem can be linked to being overweight.

Agitated movement of legs and limbs

Periodic limb movement disorder –this is characterised by jerky movements of the limbs that interrupt sleep or repetitive movements during sleep. This can lead to tiredness during the daytime.

Restless leg syndrome –this is involuntary movement of the legs during sleep and this can also be associated with insomnia and/or being tired during the daytime.

Parasomnias (abnormal sleep behaviour)

  • Sleepwalking – this typically occurs during deep sleep and involves actions such as walking whilst asleep. As the person is in deep sleep during the behaviour, they are difficult to wake up and they do not usually recall the behaviour.
  • Sleeptalking – this can happen throughout stages of sleep and involves producing speech or speech-like sounds whilst asleep.
  • Night terrors – this refers to experiencing, whilst asleep, extremely upsetting emotions that are difficult to waken from.
  • Nightmares – these are dreams that are distressing and usually wake you up.

Narcolepsy

  • Sleep attacks  unexpected and uncontrollable bouts of sleep during the daytime.
  • Hypersomnia – excessive sleepiness and extended sleep.
  • Cataplexy – sudden loss of muscle tone in response to emotion.
  • Sleep paralysis – inability to move especially on waking from sleep.

Sleep disorders associated with medical or psychiatric disorders

Many medical disorders have sleep problems associated with them. Mental health problems can also affect sleep patterns and quality. These should also, therefore, be considered when you encounter sleep problems.

A psychological approach to understanding insomnia

A diagnosis is often helpful. It helps us to have a name for what is causing us distress. It can also help us think about what we might need to do to get better.

A psychological understanding of a problem is also very helpful. Psychologists use a process called formulation to help develop a detailed understanding of a person’s difficulty. A formulation will typically describe predisposing, precipitating and perpetuating factors.

Predisposing factors

These factors refer to those things in life that might have made you vulnerable to developing a particular problem. In relation to insomnia, this could include having always been a poor sleeper, having a condition such as ADHD or having a family history of poor sleep.

Can you think of any predisposing factors you may have that might make you more likely to be a poor sleeper?

Precipitating factors

This refers to “triggers” – what was happening at the time that contributed to you developing a problem. In relation to insomnia, examples could include a house move, being diagnosed with a health condition or family/work-related stress. A study published in 2004 found that 60% of patients with insomnia could identify a trigger for their sleep disturbance, and these tended to be around family, work/school and health (Bastien et al. 2004).

Take a moment to think if there are any changes in your life, or big events, that started around the time of your sleep problems. These might be ’precipitating factors’.

Perpetuating factors

This refers to those factors that keep the problem going or exacerbate it. For example, sometimes when we have a bad nights sleep, we might worry about it and this worry makes if difficult to get to sleep the next night.  We might then have thoughts that cause anxiety such as “I will never get to sleep”- such thinking, causes anxiety that maintains sleep difficulties. Alternatively, we might develop some coping behaviours such as having a nap throughout the day or drinking alcohol at night. These coping behaviours can actually keep the problem going as they disrupt the sleep routine.  Perpetuating factors, therefore, keep the problem going, even after the initial trigger might have passed.

Have you noticed that you have become more worried about getting enough sleep? What are your thoughts before bedtime? You might have changed some routines or be napping during the day to ‘catch up’. These might be ‘perpetuating factors’ that are maintaining your insomnia.

From Formulation to Intervention

Okay, so now you might have an idea as to what has caused your sleep problems but what can you do about it? Understanding sleep difficulties, keeping in you’re your own predisposing, precipitating and perpetuating factors can help you understand how to get better using an intervention called Cognitive Behavioural Therapy. This type of therapy is considered to be the gold standard treatment for insomnia and research has shown this to be the case. Typically, CBT focuses on the perpetuating factors; those thought processes and behaviours that might be maintaining the problem or making it worse.

The Bed-Sleep connection

When we are sleeping well, we have a strong bed-sleep connection. This means that we associate being in bed with sleeping. The very thought of going to bed induces feelings of relaxation and sleepiness. We start to engage in our sleep routines, sleepiness increases, we climb into bed and fairly quickly we fall asleep. The bed acts as a ’cue’ to sleep. As described above, some people may have difficulties with sleep that has weakened the strength of the bed-sleep connection. It could be that you have always been someone that does not sleep well. Or perhaps you grew up with parents that rarely slept well. If this is the case you might not have a strong bed-sleep connection. For you, the notion of bed does not induce sleepiness as powerfully as it does for others. Or, perhaps you have always been a good sleeper, however, something happened in your life that triggered poor sleep- you got a new job for example and this caused some anxiety. This might have lead to you lying in bed awake, feeling anxious, tossing and turning throughout the night. As this continues, the bed-sleep connection weakens. You start to associate the bed with lying awake and feeling anxious rather than being asleep. A goal of cognitive behavioural therapy for insomnia is to strengthen this bed-sleep connection. In this web-page, you will find various techniques to help you to establish this.

What helps – Things you can do to improve your sleep

Sleep Diary

Keeping a sleep diary can be a really helpful strategy that can help you develop a greater awareness of your sleep. The better you understand your sleep and it’s patterns and variations across the week, the more equipped you will be to address your sleep difficulties.  Keeping a sleep diary can also reduce distress about your sleep.  At times we might think “I never sleep” and this can make us feel frustrated and upset.  This leads to anxiety about sleep which in itself makes the sleep problem worse! Looking at our sleep diary can help us keep our thinking in check and remind us of the nights when we slept better.  Your sleep diary does not need to be precise so don’t worry about clock checking- it is just to give you a rough estimation of how you slept the night before. Try and complete it within the first hour of waking.

Sleep Hygiene

By changing some of our lifestyle habits and our environment, we can make significant improvements to our sleep. This is what sleep hygiene refers to.  It is sorting out the basics of good sleep. There are lots of practical things you can do to help you get a better night sleep.

Caffeine

Caffeine is a stimulant drug; this means that it perks you up and makes you feel more alert.  Caffeine can be found in drinks (e.g. coffee, tea and cola), food (e.g. chocolate) and medications.  Many people use caffeine to get going in the morning or to waken up in the evening.  Anyone who has had a difficult nights sleep will relate to wanting a strong coffee to get going!  The problem is, this stimulant can also keep you awake at night time, just when you should be winding down and going to bed.  The effect of caffeine can last for many hours, therefore, it is recommended to avoid it for 4-6 hours before bedtime.

Nicotine

This is another stimulant drug – it stimulates the nervous system. This means that rather than relaxing our bodies, it actually perks us up. This can have a negative impact on sleep, keeping us awake rather than helping us to fall asleep. The addictive nature of nicotine can further disrupt the sleep process as cravings can wake the body up.  Some smokers might be in the habit of waking up throughout the night to smoke, disrupting a healthy sleep routine.  If you are a smoker and you are experiencing sleep problems, it would be a good idea to try and cut down on how much you smoke and avoid smoking throughout the night. This is easier said than done. There is more information on stopping smoking.

Alcohol

Alcohol is a depressant drug and unlike a stimulant, this slows the body down.  Some people even report that it “helps” them sleep.  Unfortunately this is not the case.  Whilst alcohol can induce sleepiness and make it more likely that you will fall into a deep sleep, as the alcohol gets absorbed by your body, alcohol withdrawal starts that can cause you to waken or move into a lighter stage of sleep.  Side effects of alcohol include dehydration and the need to urinate and both of these things can cause you to wake up.  So, although alcohol might help you fall asleep, the sleep quality is poor and not restorative.  It is recommended that alcohol should be avoided for 4 hours before bedtime.

Diet

Both hunger or overeating at bedtime can disrupt sleep.  If you feel hungry before bed, a light snack can help and stop feelings of hunger causing wakefulness.  However, avoid a large meal before bedtime as the body has to work hard digesting food and this can disrupt sleep.  Also, food gives energy so choose a non-sugary snack to avoid a “sugar rush” at night time. 

Some people have reported that a warm milky or malty drink at bedtime can help promote sleep.  Avoid caffeinated drinks like tea/coffee or coke! 

If you are someone who wakens in the night and heads to the kitchen for a snack, try and cut this out.  The body can start to expect food in the middle of the night and this may increase night time awakenings.

Exercise

Physical fitness is associated with better sleep. A great way to improve sleep is to try and fit in some physical exercise to your day. People should aim to do 20 – 30 minutes of physical exercise, at least three times week.  This doesn’t mean you have to take up going to the gym, you could go for a walk, jog or a swim. Or what about doing something with a friend like a game of tennis or badminton?  Introducing exercise to your day can help you get that good night sleep, however, avoid doing it too close to bedtime as that can waken you up! Try and fit it in before the evening.

In addition to making small changes to our lifestyle, making changes to our bedtime routine and the sleep environment can also help improve your sleep.  Let’s have a look at what you can do.

Noise

Noise can disrupt our sleep: sudden banging, a baby crying or a car horn beeping can all waken us up, even from a deep sleep. However, we can also get used to noises in the background such as light traffic and the wind.  It can be worth having a look and a listen in your bedroom and trying to identify any noises that could be keeping you awake or disrupting your sleep. Does the boiler kick in at 3am? Is there something that beeps in the night?  Do your heaters creak as the heating comes on? Do you have a partner that snores? Can you make changes to this to ensure a silent night?  For example, some people find that wearing earplugs help.  There might be some noises that you can’t control, but trying out different relaxation techniques (see relevant section) can help.

Room temperature

Ideally your room should be around about 18 degrees Celsius. A room that is too hot or too cold can significantly disrupt sleep so get a thermometer and see if this helps.

Body Temperature

People who often report feeling too hot are more likely to have sleep difficulties. Although many people like to have a bath before bed to help them sleep, if this raises your body temperature, it might actually make sleep more difficult.  Having said that, a bath can be a nice part of a bedtime routine. Make sure and have it at least an hour before bed so that your body temperature returns to normal. A very heavy duvet or thick pyjamas might also raise your body temperature so consider these factors when making changes to your sleep environment.

Air Quality

Fresh air can help promote sleep. It might be an idea to open your window for a while before bed to let in some fresh air. Of course, bear in mind the time of year and temperature!

Lighting

Natural light levels influence the production of melatonin. This is a hormone that controls our body clock. When it is dark, melatonin production increases causing sleepiness and as natural light creeps in during the morning, this decreases the production of melatonin, reducing sleepiness. It is therefore important to consider light when making changes to your sleep environment. Ensure curtains are drawn and that as much light is shut out as possible. If you have thin curtains, putting a blanket across your window might help or alternatively consider wearing an eye mask. Keep artificial light to a minimum or not at all during the night time. Also, avoid looking at tablet/laptop devices before bed as the light that comes from these objects can inhibit the production of melatonin which can get in the way of feeling sleepy.

Bed Comfort

Feeling discomfort throughout the night is going to disrupt your sleep.  Consider the comfort of your mattress, pillow and bedding.  Is the mattress the right size, is it too hard or too soft?  What about your pillow?  Is it too thick or too thin, do you need two pillows or none at all?  Is your bedding clean and comfortable?  It is worth experimenting a bit here to find out what suits your own preferences best.

Make a list of some goals that you are going to put in place with regards to sleep hygiene.  What changes could you make to your lifestyle and to your environment to help you get a better nights sleep?

Developing a Sleep Routine and Unwinding Before Bed

It would be unrealistic to think that you can go to bed at any time and simply fall asleep. A good period of winding down can help the body and mind prepare for sleep. A consistent sleep routine helps create cues that lead to the body and mind winding down ready for bed.  We do this for babies, don’t we? Many people get their babes into an evening routine of “bath, bottle then bed” and we can see how such a consistent routine prepare the infant for bed. Adults need this too! It is a good idea to start your sleep routine a good 60 to 90 minutes before going to bed.  Try to first slow down and stop your activities and work and switch to relaxing activities. Adjust the lighting so that it is less bright. Perhaps have a bath before getting a light snack and having a read of a book.  Consider what you find relaxing and try to implement that into your day here. Then, once you are feeling sleepy, prepare for bed (e.g. lights out, lock doors, brush teeth).

Relaxation

Being in a relaxed state before going to bed is certainly helpful. Many people who have sleep difficulties find this difficult: as sleep problems develop, people can become anxious as they get ready for bed, wondering if they will manage to sleep that night.  If this is you, learning some relaxation techniques could be helpful. Relaxation does not always come automatically but it can be learned. There are many things that we do to relax and some of these are fairly active relaxation pursuits such as exercise.  Such activities use up energy leaving us feeling relaxed afterwards.  Other types of relaxation are more about easing the body and mind, slowing down and letting go. Activities of this type could include reading a book or having a bath. It might be helpful to write a list of things that you can do to help cause a state of relaxation and introduce these to your day or pre-bedtime routine.

Relaxation Techniques

In addition to these activities some people find that engaging in a relaxation technique, can help facilitate a state of relation and sleepiness. Please follow the links below to access relaxation techniques

Progressive Muscle Relaxation

Information on progressive muscle relaxation 

Mindful breathing

Information on mindful breathing

Meditation

Information on meditation 

These relaxation techniques can help to relax our bodies and our minds. There are other strategies that you can use to help you to learn to manage difficult thoughts and/or worries. Many people find that they can’t sleep because their mind does not stop. You might be worrying about what has happened that day, or what you need to do the next day. Try some of these techniques to help manage your thoughts/worries.

Putting the Day to Rest

Do you lie in bed at night and remember all the things you should have done but didn’t. Or suddenly remember something you need to do the next day? A helpful tool for this type of anxiety is to spend approximately 20 minutes in the evening thinking about your day and what is happening the next day and writing anything down that you need to do. Professor Colin Espie, an International Sleep Expert calls this putting the day to rest. He recommends following to help put the day to rest.

  • Set aside 20 minutes in the early evening, at the same time each night
  • Sit somewhere where you will not be disturbed
  • All you need is a notebook, a diary and a pen
  • Think about what has happened during the day, how you feel it has gone
  • Write down some of the main points. Put them to rest by putting it on paper.  Record what you feel good about as well as what has been difficult
  • Write a “to do” list
  • Now think about tomorrow, what is coming up, what you are looking forward to and what is troubling you
  • Write down the schedule in your diary if not done so already
  • Write down anything you are unsure about and make a space in your diary for when you can find out more about it
  • Use these 20 minutes to take control of what has happened and what is coming up. Close the book on the day
  • As you go to bed, remember that you have dealt with all that you can and that you have put the day to rest
  • Keep some paper by your bed so that if any new thoughts pop up, you can jot them down to be dealt with in the morning

Thought Blocking

Some people find that their mind really races at night time, flitting from thought to thought. Putting the day to rest can really help. Another technique to employ when in bed is “thought blocking”. This is a technique that stops you thinking of the annoying fleeting thoughts. What you do is repeat the word “the” every 2 seconds (say it in your head) and keep this up for about 5 minutes. This blocks out the unwanted thoughts with a word that is meaningless. It is therefore unlike to have an emotional effect and will therefore not cause arousal but rather boredom!  

Paradoxical thinking

When sleep does not come, we can become really preoccupied with trying to get to sleep. The more we try and fail, the more distressed and anxious we can become and the more we try and try to sleep! With sleep, the harder you try the less likely it is that sleep will happen. One method to overcome this type of anxiety is to turn things around and actually try to stay awake. Lie in bed, keep your eyes open and say to yourself that you are going to stay awake. As you start to feel sleepy, try and think about staying awake for a few minutes longer. Turning your thinking away from trying to sleep to trying to stay awake, can reduce the preoccupation with sleep that leads to distress and wakefulness. 

Re-evaluating some of your thoughts

Our thoughts can have a powerful effect on how we feel. If we are thinking negatively we can feel quite down or anxious. This, in turn, can impact upon our sleep as we develop anxiety about sleeping. Our thoughts about sleep are not always accurate and as we become anxious, out thoughts are more likely to become distorted and faulty.  To check in on our thoughts and to evaluate their accuracy, it can be helpful to keep a thought diary. 

Often where there is an emotion such as worry or sadness, our thoughts can become distorted, and are usually quite negative! If we write down how the thought makes us feel, and then stand back and re-evaluate that thought, we might come up with a more balanced picture.

You can use the diary below to try this. Write down your sleep thoughts and how these make you feel. Then evaluate the accuracy of that thought and see if you can write down a more balanced version of that thought. Again, consider how this new thought makes you feel. If you find this difficult, try asking someone to help you come up with a more balanced thought – this helps provide a different perspective.

Strengthening the Connection Between Bed and Sleep

As described earlier, improving that automatic connection made by the brain between bed and sleep, is an important part of overcoming sleep difficulties. By implementing many of the strategies described, you are more likely to get a good nights sleep. The more experiences you have of sleeping, the stronger your bed- sleep connection becomes. Here are some more tips to help build up that connection:

The bed should be for sleeping.  Avoid spending long periods of time reading or watching TV in bed.  Sexual activity is the only exception!

Go to bed when you feel sleepy-tired.  If you go to bed whilst you still feel wide awake, you may find your self tossing and turning.

If you have been having sleep problems for a while, aim to spend approximately a quarter of an hour getting to sleep. If you are still awake, get up and do something relaxing. This stops you spending a lot of time being wakeful in the bed. Return to bed once you feel sleepy tired. If again, you are not asleep after a quarter of an hour, get up again!  It is a good idea to prepare for this: ensure you have a nice and relaxing room to go to and have a think of what relaxing activities you might do at this time. It can feel lonely being up on your own to prepare.

Avoid napping throughout the day.  The daytime is for being wakeful and night time is for sleeping.  You want to ensure these associations (day-wake and night-sleep) are in place and are strengthened. Although you might want to nap, in general, this makes a sleep problem worse.  It weakens the bed – sleep association and also gets in the way of building up the need for sleep throughout the day.

Living with…Insomnia

The Impact of Insomnia

Mood

Insomnia can be a very isolating condition as the effects are not clearly visible. Symptoms of fatigue, poor concentration and low mood are felt by the person, but cannot be easily identified as difficulties in the eyes of others. Friends, family or carers can be dismissive of the impact or worry that insomnia causes for the individual, and this can make them feel even worse about the condition. They can feel isolated and sometimes dismissed when others also claim they have sleep problems as well (but are referring to lesser symptoms). In addition, the period when not awake can in itself feel very lonely for the person suffering the condition, and they can be limited in what activities they can do during this period. There is evidence that shows there is a big overlap in the number of people that suffer Insomnia that also suffer depression. It is difficult to determine which might cause the other if there is a causal link at all. This remains unclear.

Relationships

Relationships can be affected too. There is sensitivity about disturbing partners/close family, and increased sensitivity or guilt. Sometimes a partner may decide to sleep in a separate room so as not disturb the other person, such is their increased self-awareness or potential to cause arguments or disagreement. These fears and feelings were borne out in the comments made in interviews with a group who had insomnia and chronic pain. You may recognise some of these sentiments:

“Well I’m very private and don’t talk about my… lack of sleep at all…except to my husband. Well they’re (other people) just ignorant and it’s okay lets just, you know, that’s fine, we’ll just go along like that…”

“Well my good friends, they will be interested to know how I’m feeling. I don’t really expect people to want to know how I’m feeling.”

“This is the first time I’ve ever spoke about it, about sleep …even when I think about friends I haven’t spoke about that in connection with pain…I don’t find it easy to speak to just everybody.”

“I used to text her (my daughter) during the night and she used to say ‘dinnae text me during the night ‘cos my phone goes off’…”

“It’s boring really. You cannae do this, you cannae do that, you cannae even shove some washing in the machine and put it on ‘cos you’re annoying your neighbours then. You cannae do nothing.”

“…my husband is blessed with a very good nature and he is an angel really. He’s very good. I do my very best to keep him in a good, amiable mood and happy so we can both manage between us.”

“Yeh, I’m frustrated because I can’t sleep and I’m shouting at my mum on the texts and then I have to say I shouldnae have said that so I say ‘sorry’ and she says ‘that’s okay, am (I’m) your mum’ but I feel terrible and I shouldnae be doing that.”

You might also look at the Mood section of this website on ways to help, such as talking to friends and family about things.

Find out more

NHS

  • Information from the NHS on Sleepio
  • Helpguide.org information on sleep
  • NHS Choices information on sleep

Other services

There is an online Cognitive Behavioural Therapy course called Sleepio that has a growing evidence base for helping people over come sleep difficulties.  It is possible to receive this online course for free by registering to take part in their research project, details are available from Sleepio and the National Sleep Foundation (USA)

Acknowledgements

Espie, C. (2010). Overcoming insomnia and sleep problems : A self-help guide using cognitive behavioral techniques. London: Constable and Robinson.

Sleepio 

Looking after someone with…Insomnia

Those suffering insomnia can feel the symptoms of tiredness, loneliness, poor daytime functioning (concentration and motivation), and there is often low mood present too. The physical symptoms can be difficult to manage, but what can make things worse is the feeling that nobody takes their symptoms seriously, and that they are dismissed as ‘just having some sleep problems’. In reality, this can make sufferers feel not believed and affect their mood. They can feel misunderstood and isolated, even when around others.

If a loved one has Insomnia it is important to take them seriously, even if you can’t see any symptoms yourself. Direct them to this website where they can learn and identify what symptoms they have and whether this is actually insomnia, or another health condition that is behind their sleep problems.

On this Insomnia section, there are self-assessment measures they can use and even try some self-help strategies to get started with. Often simple changes to the bedroom environment or a good routine before heading to bed can make a big difference. Have a look at the other sections in this Insomnia section for some useful tips and strategies.

But remember, believing them is important. Take them seriously and show understanding. Unless you also have (or have had) Insomnia, don’t say you know what it’s like – this makes them feel like you are trivialising their problem. Say that you don’t know what it’s like, but that it sounds very hard to deal with, and that you’ll try to help them as much as you can. If you share a bed with them, don’t give them a hard time for getting up during the night or accidentally waking you. This will just make them more stressed and less likely to get to sleep. Be kind, supportive and show them you care. That can make a huge difference.

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site

BSL – Sleep Disorder

NHSGG&C BSL A-Z: Mental Health – Sleep Disorder

Occasional sleep disturbance is common and quite a normal experience familiar to us all. Everyone experiences difficulty getting to sleep or staying asleep at some time in their lives. This often occurs at times of change or times of stress. Insomnia is a condition where you have problems getting to sleep or staying asleep for 3 or more nights per week and persisting for at least 6 months. There might also be daytime mood and performance effects.

People with insomnia often experience:

  • Difficulty falling asleep
  • Difficulty staying asleep
  • Frequent night time awakenings
  • Feeling very tired the next day

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde.

Generalised Anxiety Disorder, or GAD as it is commonly known, is a subtype of anxiety disorder. Anxiety is often described as a feeling of unease, worry, or fear that can range from a mild to severe feeling.  Anxiety is common and most people will experience some level of anxiety at stressful times in their life, for example when sitting an exam, going for a job interview, or having a medical test.

GAD is much more than ‘normal’ worry or anxiety and there are a number of key differences between experiencing GAD and the type of anxiety people experience day to day:

  • GAD is characterised by chronic worry for more than a six-month period, in which you feel anxious in a wide range of situations, as opposed to a specific event/situation
  • If you have GAD, you are likely to feel anxious a lot of the time, and this may feel out of control
  • If you are suffering from GAD you may not always be clear about what the cause of the anxiety is
  • You may feel ‘on edge’ or more alert to your surroundings
  • You may also find it incredibly difficult to control your worries and symptoms of anxiety
  • Often when you resolve one anxious thought, it will quickly be replaced with another issue if you are experiencing GAD.  

Generalised Anxiety Disorder can cause both physical and emotional symptoms and people may feel that their thinking patterns and behaviour have changed.  When someone has anxiety, they often notice changes to their thoughts (for example noticing worried thoughts such as “something terrible has happened”), their emotions (for example feeling extremely fearful), and their behaviours (for example avoiding situations that may cause anxiety, or seeking reassurance from others). 

However, like with other anxiety disorders, symptoms of GAD can vary from person to person, but can include psychological, emotional, and physical symptoms.

More Information

Psychological or Emotional Symptoms
  • Feeling restless or finding it difficult to relax
  • Feeling worried or on edge
  • A sense of dread
  • Racing thoughts
  • Difficulty concentrating or an inability to focus
  • Irritability
Physical Symptoms
  • Difficulty falling or staying asleep
  • Tiredness or fatigue
  • A noticeable increase in strength or frequency of heart rate (palpitations) or an irregular heartbeat
  • Muscle aches or tension
  • Shaking or trembling
  • Stomach ache, feeling sick, or loss of appetite
  • Excessive sweating
  • Shortness of breath

As there is not always a clear cause of the anxiety and because people’s symptoms vary so widely, it can be difficult to diagnose GAD. Your doctor might say that you have GAD if you have felt anxious most days over a period of around six months or may want to refer you to another service who specialise in understanding anxiety and other mental health conditions.

GAD is thought to be one of the more common anxiety disorders, with studies suggesting that around 1 in 50 adults will experience it at some point in their lifetime. As with many mental health conditions, the exact cause of GAD is not currently fully understood.  However, various risk factors may play a part. For example, genetic makeup may make people more likely to have an ‘anxious personality’ which can run in families and may put you at higher risk of developing GAD. Experiencing significant negative events in childhood may make you more prone to anxiety in your adult life. It may also be that a major stress in life could ‘trigger’ anxiety, for example, experiencing a significant health problem or bereavement, but unfortunately, the symptoms can persist after the trigger has gone.

What helps

As the symptoms associated with GAD are so uncomfortable and unpleasant, you might try to find ways of reducing the anxiety yourself. However, this might result in you avoiding situations that cause you to feel worry or dread.  It is common for people with GAD to withdraw from socialising, or only doing things in a certain way in order to feel safe. For example, you might withdraw from family and friends, or you might find work to be very stressful and then take some time off sick. Unfortunately, while this may reduce the anxiety in the short term, these actions can make you worry even more and can also lead to low self esteem and loss of regular ways of coping, which can have a negative effect on your emotional well-being in the longer term. For example, sometimes it might be helpful to take some time off work, however, this is not a long-term solution, and you may find it even more difficult to go to work after a long time off.

The most helpful thing that you can do if you think you might be experiencing GAD is to talk to someone about how you are feeling. Your General Practitioner (GP) is a good place to start and they will be used to talking to people experiencing similar symptoms. Your GP should be able to can provide you with information about the various treatment options available for GAD if it is confirmed that this is what you are suffering from. It is important to think about the pros and cons of each of these so that you know what to expect and are aware of any potential risks of side effects.

There are three main types of treatment for GAD:

  • Self-help resources
  • Talking treatments (psychological therapies)
  • Medications.

Self Help Resources

Your GP might direct you to an individual self-help course to help you to learn more about GAD and what you can do to help yourself feel better. This usually involves working from a book or a website with occasional contact with your doctor to monitor your symptoms and progress. Alternatively, you may be offered a place in a group with other people who have similar problems where you can learn how to tackle your anxiety. There are lots of helpful resources available to support you through this process.  For some good examples, please see the links in the ‘find out more’ section of this page.

Talking Treatments (Psychological Therapy)

Often people will try a type of self-help treatment for GAD in the first instance. However, if this approach does not work for you, or does not lead to an improvement in your symptoms, or if your symptoms are more severe, your GP may refer you for something called ‘talking treatment’. Talking treatments are a type of psychological therapy and offer some of the most successful treatment options for GAD. Talking therapy involves working through a process with a trained therapist to help you to understand the causes of your anxiety, and to help you to find strategies to help you to manage your symptoms. There are a number of different talking treatments available; however one of the most effective in treating GAD is Cognitive Behavioural Therapy (CBT).  This approach helps you to understand the connection between your thoughts, your behaviour, and your GAD symptoms. This type of psychological therapy involves meeting with a therapist for around one hour a week over a period of a few months. During talking therapy you will develop strategies to cope which are designed to help you to manage your anxiety symptoms independently in the future. It can be described as adding various tools to a toolbox that you can keep and use later.

Medication

If you prefer not to try talking therapy approaches, or if you continue to struggle with symptoms of anxiety, your GP may offer you some medication.  A variety of different medications are available, however, it is important to discuss your symptoms fully with your doctor so that they can match a medicine to suit your individual needs. If you decide to take medication you will need to see your doctor regularly to assess the impact of the medication. As with all medications, there is the risk of side effects and it is important that you tell your GP if you experience side effects as they may be able to adjust your dose or prescribe an alternative.

The four main types of medication you may be prescribed to help you with your GAD symptoms are:

  • Antidepressants – these might help you to feel more calm, and may improve your sleep
  • Benzodiazepines – these medications will not deal with the cause of your anxiety, but they can help to reduce your symptoms until you are able to consider other treatment options. They should only be used as a temporary measure as it is possible to become dependent on these medications
  • Pregabalin – this type of medication can be used to treat GAD. It is normally used to treat epilepsy but is also licensed to treat anxiety
  • Beta-blockers – these medications are used less frequently in GAD as they only treat the physical symptoms of anxiety by reducing your level of physiological arousal. They are often more helpful in treating short-lived anxiety, like phobias. They are short acting which means that you will need to keep taking them, and they will not reduce any of your psychological symptoms like worrying thoughts.
Living with…Generalised Anxiety Disorder

GAD is different from ‘normal worry’ and it can be difficult to live with as the anxiety is prolonged and the level of anxiety can be severe. People with GAD feel anxious much of the time and this can affect your ability to complete day-to-day activities or basic tasks.  Because GAD is not specific to a particular situation or as a result of a particular event, you may feel that there is little respite from it and as though it has taken over, making it difficult to think about anything else. The fact that there is often no clear trigger for the anxiety can mean that GAD is difficult for people to understand and often not knowing what is causing you to feel this way can make you feel worse.  You may think that “things are out of your control”, “there isn’t a solution” or “I might always feel this way”. As a result, GAD can have a major impact on your general well-being, your emotional health, your ability to work, and may also affect your relationships. It is also common to have other conditions, such as depression or other anxiety disorders if you have GAD.

Find out more

NHS Choices website has more information about anxiety disorders including GAD.

Well-being Services South Glasgow website has lots of information about anxiety and includes a self help booklet & also provides video and audio guided relaxation exercises, which you can also use for free.

MIND is a mental health charity which offers a range of helpful information, guides to support and services, and stories from people who have lived experience of anxiety.

Anxiety UK is a charity with over 40 years of supporting people with anxiety. It offers information as well as telephone, email and text support.

The Centre of Clinical Interventions has workbooks about worry and anxiety that you can work through yourself at your own pace.

Looking after someone with…a Generalised Anxiety Disorder

It is important to remember that whilst suffering from Generalised Anxiety Disorder your family member or friend is not themselves, and this means that you may need to adjust your expectations and the way you interact with them.  Although you might not understand how they feel, or why they are feeling this way, it is helpful to try to adopt a non-judgemental approach rather than trying to dispel the anxiety with ‘logical’ arguments. There are a number of specific things that you can do which may help a friend or family member when they are suffering from anxiety:

  • Try to find out more about anxiety so that you can learn more about the condition yourself. This might help you to be understanding and supportive. Let your friend or family member that you are there to support them, and ask them what you can do to help – they might already have ideas about how you can support them or what they need from you. This might be things such as talking to them calmly about how they are feeling or doing deep, slow breathing exercises with them.
  • Stay calm and listen to your family member or friend’s wishes.
  • Try not to pressure them – seeing a family member or friend suffer from anxiety can be distressing and make you want to ‘fix’ it for them or find practical solutions. However, it can be very distressing for someone with anxiety to feel under pressure and it could even make them feel more worried.
  • Encourage them to seek help from their GP or access self-help resources.  It may be helpful to ask if it would help to accompany them to a GP appointment, or even call to organise one.  
  • Look after yourself – it can be stressful supporting someone else and it is important to take care of your own well-being.  This can help you to be in the best position to help someone else.

Further information for carers is available on our NHS Greater Glasgow and Clyde carers site

Real life stories

See Emily’s story about living with anxiety at University  

Hear Alex talk about the physical symptoms of anxiety and the impact they had on him 

Hear Zoe’s story about living with GAD after her Dad passed away 

BSL – Generalised Anxiety Disorder

NHSGG&C BSL A-Z: Mental Health – Anxiety

Anxiety is a feeling that we can all get but sometimes it can become excessive and stop you from doing the things you want to. These feelings can become a problem when they cause distress or make us feel uncomfortable. There are various types of anxiety disorders depending on how often they occur or if they are triggered by certain things. Examples might be when the feelings of anxiety can occur all the time for no apparent reason with lots of worrying thoughts and physical symptoms such as a racing heart, feeling breathless, knot in your stomach, increased sweating. This is called Generalised Anxiety. Sometimes these symptoms can occur without warning for short periods of time for no apparent reason. These are called Panic attacks. Sometimes the feelings of aniety can be brought on by specific things such as a fear of heights or crowded places or spiders etc. These are described as Phobias.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde

What are Eating Disorders?

Eating disorders are serious mental illnesses which can affect you physically, psychologically and socially. They include Anorexia, Bulimia, Binge Eating Disorder and Other Specified Food and Eating Disorders (OSFED), formally referred to as Eating Disorder Not Otherwise Specified (EDNOS).

Around 725,000 people in the UK are thought to be affected by eating disorders (BEAT, 2015). Although eating disorders are serious, recovery is possible with the right help and support. Anyone can be affected by an eating disorder regardless of age; gender or cultural background. Previously, eating disorders were seen as disorders which only affected young teenage girls, but there is growing awareness that eating disorders can affect all gender and age groups. Eating disorders have the highest mortality rate of the mental health disorders, this is often as a result of physical complications or suicide.

The causes of an eating disorder are complex and include biological, psychological and social factors.

Treatment usually involves exploring the various factors that have contributed to the development of the eating disorder.  An example of some of the factors that may be involved include; issues around control, developmental issues, depression; low self-esteem; sexual abuse; having a first degree relative with an eating disorder; feeding and eating difficulties when younger; puberty; relationship changes; illness; bullying; parental divorce and dieting behaviour.

More Information

What is Anorexia?
  • Intense fear of being and/or becoming fat
  • Restricting food intake leading to a significantly low body weight for a person’s age, height, gender, developmental trajectory and physical health
  • Distorted perception in how their body is viewed (e.g., thinking that they are fat when they are in fact very thin)
  • Subtypes: Restricting & Binge/Purge.
What is Bulimia?
  • Recurrent episodes of binge eating whereby a large amount of food is eaten over a discrete amount of time in what feels like an out of control manner
  • Behaviours to compensate for the binge such as self-induced vomiting; misuse of laxatives and diuretics; over-exercise and fasting or restricting
  • This happens at least once a week for 3 months
  • The person’s view of themselves is unduly influenced by their body shape and weight.
What is Binge Eating Disorder?

Recurrent episodes of binge eating whereby a large amount of food is eaten over a discrete amount of time in what feels like an out of control manner.

The episodes of binge eating are not accompanied by compensatory behaviours such as self-induced vomiting or over-exercising.

The episodes are associated with three or more of the following:

  • Eating much more quickly than normal
  • Eating until they feel uncomfortably full
  • Eating a large amount of food even when they don’t feel physically hungry
  • Isolating themselves whilst eating due to embarrassment about how much they are eating
  • Feeling depressed, guilty and disgusted with themselves after the binge.

This happens at least once a week for 3 months.

Other Specified Feeding or Eating Disorder (OSFED)

OSFED is diagnosed when there are feeding or eating behaviours that cause significant distress and impairment to daily life but that do not meet the full criteria for any other feeding or eating disorder.

OSFED includes;

  • Atypical Anorexia Nervosa –all the criteria for anorexia are met but despite significant weight loss, weight remains within or above the normal limit
  • Binge Eating Disorder (of low frequency and/or limited duration) –all the criteria for BED are met but the episodes of bingeing occur less than once a week and/or have been occurring for less than 3 months.
  • Bulimia Nervosa (of low frequency and/or limited duration) – all the criteria for bulimia are met but occur less than once a week and/or have been occurring for less than 3 months
  • Purging Disorder – Occurs in the absence of binge eating and is characterised by recurrent purging behaviour to influence weight or shape
  • Night Eating Syndrome – Recurrent episodes of night eating either by excessive food consumption throughout the evening after the main meal or awakening from sleep to eat during the night. This is diagnosed when the behaviour is not better explained by another mental health disorder (for example, BED).
Unspecified Feeding or Eating Disorder (UFED)
  • This diagnosis applies when the behaviours cause significant distress and impairment to day-to-day functioning but do not meet the full criteria of any of the feeding or eating disorders.
  • This diagnosis may be given if the clinician does not have enough evidence that the behaviours meet criteria for another feeding or eating disorder.
Signs and Symptoms of Eating Disorders
  • Anxiety around food, eating and/or meal times
  • Avoiding mealtimes or eating situations
  • Counting calories/weighing food
  • Sudden avoidance of previously enjoyed foods
  • Labelling of foods as “good and bad”
  • Significant loss of weight
  • Rigid patterns around eating (e.g., eating food in a certain order or cutting food up in a certain way)
  • Social isolation and avoidance of social situations involving food
  • Signs of binge eating (e.g., food missing from the cupboard or fridge; food wrappers hidden or disposed of secretively)
  • Frequent trips to the bathroom after eating (which may be a sign of self-induced vomiting or laxative misuse)
  • Feeling faint or actually fainting
  • Tiredness and difficulty concentrating
  • Swollen cheeks and/or puffy eyes may be a sign of self-induced vomiting
  • Periods may become irregular or stop
  • Evidence of compulsive exercise (e.g., exercising in bad weather or exercising despite having an injury)
  • Feeling and being cold
  • Lanugo hair (a fine hair that grows all over the body)
  • Wearing loose clothing to hide weight loss
  • Frequent fluctuations in weight
  • Distorted perception of one’s shape and size
  • Intense fear of gaining weight
  • Preoccupation with weight, shape and food
  • Displays distress at mealtimes
  • Low self-esteem; feelings of worthlessness
  • High expectations of oneself/attempting to attain ‘perfection’ in life
What helps

Accessing appropriate and timely treatment through your GP is an important step towards recovery from your eating disorder. This may involve psychological work to understand where the disorder might have developed from; nutritional education and physical monitoring. Treatment is more effective if the individual themselves is committed to recovery. Having supportive family and friends to lean on during recovery is also invaluable. There are also 3rd sector organisations such as the UK’s leading eating disorder charity, Beat, who offer telephone support and message boards to those affected by eating disorders. Further details can be found under the Find Out More section of this page.

Referral Pathway

If you are concerned that you or someone that you care for may have an eating disorder, the first point of contact for seeking help would be your GP. The GP can then make a referral to your local Community Mental Health Team (CMHT) as appropriate. For most people, eating disorders can be managed within the CMHT. A CMHT is comprised of psychiatrists; psychologists; community psychiatric nurses (CPNs) and occupational therapists. If your eating disorder is more severe, your CMHT psychiatrist or key worker may choose to make a referral to the Adult Eating Disorder Service (AEDS).

The Greater Glasgow and Clyde Adult Eating Disorder Service (AEDS) is a specialist service offering intensive input for individuals with moderate to severe eating disorders. It also offers support for all professionals working with eating disorders across this area.  AEDS offers a holistic and recovery orientated psychological approach to the treatment and management of eating disorders, supporting individuals and their carers through this difficult journey. The multi-disciplinary team consists of practitioners from various disciplines including psychology, psychiatry, nursing, dietetics, and occupational therapy. These practitioners are trained in a variety of therapeutic interventions.

The AEDS complements the intervention offered by the CMHT, it is able to offer more intensive multidisciplinary input as required across out-patient, day programme, and in-patient.

The AEDS offers training, education, and consultation to other staff and services working alongside people with eating disorders.

Living with…Eating Disorders

Living with an eating disorder is an exhausting and draining experience whereby your daily life is consumed by thoughts of food and weight. You may find yourself thinking about food constantly; for example, you may like baking for others but would never eat what you baked yourself; you may find yourself obsessed by cooking shows; diets in magazines and the weight of celebrities. You will most likely be preoccupied by what you’ve eaten recently and when you will next be eating. Eating is followed by intense feelings of shame, guilt and disgust. The preoccupation with food and weight may become so severe that it stops you being able to function in other areas of your life. This may lead to you needing to take time out from studying and/or work. You may withdraw from your friends socially because you lack the energy to engage with them or because you are fearful that the interaction may involve food. You may become very aware of what others around you are eating and you may feel distressed and/or irritable if you perceive them to be eating less than you. In addition, you may find yourself critically comparing your weight, shape and size with strangers leading to feelings of worthlessness and disgust. It is likely that you will prefer to eat on your own when there is no-one around to watch you.

Often people who have an eating disorder feel as though they don’t deserve nice things unless they weigh X amount or follow a rigid eating pattern without deviating from it. This creates immense amounts of pressure. These expectations are often unrealistic and so when they are not met, they result in the individual feeling like a failure leading to further unrealistic expectations being made.

If you are underweight, you may feel cold, faint, and tired lots of the time. You may find it difficult to concentrate on things like reading a book or watching a television show. If you are female, your periods may become irregular or even stop leading to longer term complications like osteoporosis and fertility issues. Combined, these factors can often lead to depression and/or suicidal ideation because life becomes restricted only by the perceived success of manipulating your weight, shape, size and diet. If you binge eat, this may result in feelings of disgust, shame, and worthlessness. You may also find that your day is preoccupied by when you are next going to binge and planning what you are going to binge on.

Find out more
Looking after someone with an Eating Disorder

It can be very difficult to watch someone that you love and care for struggle with an eating disorder. You may feel confused, frightened, or angry with them. It can be very easy to focus on weight and food and believe that if they would ‘just eat’, everything would be OK. It is important to realise that the behaviours you see are your loved ones way of controlling, avoiding, and managing emotional distress. It may help to gently express your concern without becoming overly emotional; listen to your loved one if they want to talk about things and offer them support to seek help from their GP if they choose to do so. Only the person suffering from the eating disorder can make the changes necessary to recover but having supportive family and friends can go a long way in making the journey towards recovery more manageable.

Unhelpful things to say to someone with an eating disorder

  • ‘Why don’t you just eat this?’
  • ‘Why are you putting me through this?’
  • ‘Look at what you’re doing to everyone around you’
  • ‘You look like you’ve put on weight’
  • ‘You don’t look that thin’
  • ‘I’m trying this new diet because I feel so fat’
  • ‘It’s not that hard to eat’.

Helpful things to say to someone with an eating disorder

  • ‘You’re doing really well, I know how hard this is for you’
  • ‘I believe in you’
  • ‘I’m here for you’
  • ‘If you need someone to talk to, you can always speak to me’
  • ‘You’re not alone’
  • ‘I can see this is tough for you but I’m proud of you’
  • ‘You’re showing lots of strength and determination’.

Caring for someone with an eating disorder can be very draining so it is also very important to look after yourself throughout this process. Make sure to schedule in activities that you enjoy and supportive people you can talk to when things feel overwhelming.

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site

BSL – Eating Disorders

NHSGG&C BSL A-Z: Mental Health – Anorexia Nervosa

A type of eating disorder where the person will restrict the amount of food they take in with a view to losing weight or maintaining a low body weight that is unhealthy. It is frequently associated with an increased pre-occupation with their weight and possibly perceiving themselves as being fat or over-weight even when this might not be the case.

NHSGG&C BSL A-Z: Mental Health – Bulimia Nervosa

A type of eating disorder where a person goes through periods where they eat a lot of food in a very short amount of time (binge eating) and then are deliberately sick, use laxatives (medication to help them poo) or do excessive exercise, or a combination of these, to try to stop themselves gaining weight.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde, and is not a description of the text on this website.

Mood changes are a necessary part of human functioning. It’s natural to feel anxious, worried, sad or low sometimes. But when mood changes become severe, persistent and interfere with normal life, we need to take notice. 

The persistent low mood of depression is deeper, longer and more unpleasant than the short periods of unhappiness we all have from time to time. Similarly, persistent anxiety is more than just feeling worried.  Many people experience symptoms of depression and anxiety at the same time. Significant depression or anxiety affects more than one in ten people during their life. 

More Information

Depression – Introduction

Depression is a very personal experience.  Symptoms can vary from person to person but usually include changes to your: 

  • Thoughts (for example feeling worthless or to blame, hopeless and incapable)
  • Mood (feeling persistently down, anxious, or numb)
  • Behaviour (for example losing interest or pleasure in previously enjoyed activities). 

You may also notice physical changes such as loss of appetite, tiredness, or aches and pains.

Depression can come on gradually so it can be difficult to notice something is wrong. 

Many people continue to cope with their symptoms without realising they are ill. It can take a friend or family member to suggest that something might be wrong. 

The most common symptoms of depression are:  

  • Little interest or pleasure in life
  • Feeling down, hopeless, numb or empty
  • Sleep disturbances. Difficulty falling or staying asleep. Sleeping too much
  • Tiredness and lack of energy
  • Appetite disturbances. Not eating enough, or overeating
  • Feeling bad about yourself. Feeling like a failure, believing that you have let other people down
  • Difficulty concentrating on things like reading or watching television
  • Moving or speaking much more slowly. Or becoming fidgety or restless
  • Thinking about death and dying. Thinking about harming yourself. Wondering if you would be better off dead.

People may find themselves worrying excessively over the smallest things, blaming themselves for everything that goes wrong, and feeling irritated by those around them.

Depression has been described as a “heavyweight” “a state where nothing tastes, smells or feels right” or “being in a world without colour or laughter”. 

Depression can cause bleak and distressing thoughts, including suicidal thinking and planning. With support and treatment, the negative feelings often pass.

If you are unsure whether what you are experiencing is depression, the following questionnaire might help you decide whether you should get help PHQ9.

Anxiety – Introduction

Anxiety is a feeling of unease, worry, or fear. Everyone feels anxious sometimes, but for others, it can be an ongoing problem. A bit of anxiety can be helpful; for example, anxiety before an exam can keep you alert and improve performance.  Too much anxiety, however, affects focus and concentration. 

Some of the most common symptoms of anxiety are:

  • Feeling uneasy a lot of the time
  • Having difficulty sleeping, feeling tired
  • Poor concentration
  • Being irritable
  • Being extra alert
  • Feeling on edge, not being able to relax
  • Needing lots of reassurance from others
  • Tearfulness

When you’re anxious or stressed, your body releases stress hormones, such as adrenaline and cortisol. These cause the physical symptoms of anxiety which include:

  • A pounding heartbeat
  • Breathing faster
  • Palpitations (an irregular heartbeat)
  • Feeling sick
  • Chest pains
  • Headaches
  • Sweating
  • Loss of appetite
  • Feeling faint
  • Needing the toilet
  • “Butterflies” in your stomach.

Anxiety symptoms can happen occasionally or regularly. They may start suddenly or come on gradually. They can be a nuisance or extremely disabling.  Specific anxiety disorders include:

  • Panic disorder (when you have panic attacks)
  • Post-traumatic stress disorder
  • Generalised anxiety disorder
  • Social anxiety
  • Specific phobias 
What helps

Regular exercise can be very effective in lifting mood and increasing energy levels. Exercise can help improve appetite and sleep. The research behind this shows that physical activity stimulates chemicals in the brain called endorphins, which can help you to feel better. Inactivity can cause a vicious circle: the less you do, the less you want to do.  It is also important to eat well. If you aren’t eating regular healthy meals, your body won’t have enough energy, leaving you lethargic and slow.  

Although you may not feel like it, keeping in touch with people can help you feel a bit more grounded and sometimes put things in perspective. Try a short phone call to a close friend or relative, or an email or text.

Try to avoid too much stress, including work-related stress. If you’re employed, you may be able to work shorter hours or work in a more flexible way, particularly if job pressures seem to trigger your symptoms.

Be kind to yourself! Depression and anxiety can make you feel inadequate or worthless. It’s hard to do nice things for yourself when you feel like that. As soon as you feel able, do something enjoyable for yourself or someone else. 

Depression and anxiety can make everyday tasks overwhelming. It can help to break things down into smaller, more manageable steps. Set yourself a goal each day, starting with something small and working up to bigger tasks that you may have been putting off.

When you feel ready, you may find it helpful to do something to help other people, as this may help overcome feelings of isolation, take your mind off your own problems and make you feel better about yourself. The Scottish Recovery Network encourages people to share their personal journeys to recovery. Reading and sharing stories of hope, optimism, and strength can help balance the negativity of depression and can help an individual feel more in control of their own life again.

Learning how to relax and be mindful can also be helpful in your recovery.

Overcoming depression and anxiety can take time but there is treatment available. Most people recover. Understanding yourself helps – learning to recognise your own ‘warning signs’ of how you react under stress, or when things become difficult, is an important part of staying well in the future.

Find out more

There are times in our lives when many of us will experience feelings of low mood and anxiety.

There is more information about the symptoms of anxiety and panic from NHS Choices.

The Scottish Association for Mental Health offer community-based services for people with mental health problems and has a role in policy development and campaigning on mental health issues.

There is a helpful information sheet if you’re worried about someone you care about or care for who is depressed.

If you’re caring for someone with a mental health difficulty these organisations can offer support:

Self Help Resources

There are self-help guides on depression and anxiety available from Get Self Help and Rethink Mental Illness

Looking after someone with…Depression & Anxiety

Depression and anxiety cause feelings of sadness, guilt, despair and hopelessness. Self- esteem and confidence can be badly shaken.

People with depression or anxiety may avoid their friends and relatives rather than ask for help or support. This is often when they need your help and support most.

How do you help someone who may not want your help, or feel they deserve help? You can help by just being there. Showing a real interest in them, not just their problems. Be prepared to listen, and to spend time with them. This can help counter the unpleasant, negative thoughts they will have about themselves.

Someone who is depressed may need a lot of encouragement to get help. You could find out about local support groups, relaxation classes, or self-help literature. You could offer to go with them to a group or doctor’s appointment.

Sometimes it can feel that the person you know and love has changed so much, you find it hard to recognise them. If you have serious concerns about their well-being or think they may be suicidal urgent help is needed. You can call their GP or go to accident and emergency.

Supporting a friend or relative who is depressed or anxious can be an opportunity to build a closer and more satisfying relationship. However, it can be hard work and frustrating. You might feel helpless or annoyed if the person won’t accept your help. Unless you pay attention to your own needs, it can make you feel unwell too. Finding a support group and talking to others in a similar situation might help.

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site.

BSL – Depression & Anxiety

NHSGG&C BSL A-Z: Mental Health – Depression

Depression is a mood disorder that causes a persistent feeling of sadness and loss of interest. it affects how you feel, think and behave and can lead to a variety of emotional and physical problems. You may have trouble doing normal day-to-day activities, and sometimes you may feel as if life isn’t worth living.

NHSGG&C BSL A-Z: Mental Health – Anxiety

Anxiety is a feeling that we can all get but sometimes it can become excessive and stop you from doing the things you want to. These feelings can become a problem when they cause distress or make us feel uncomfortable. There are various types of anxiety disorders depending on how often they occur or if they are triggered by certain things. Examples might be when the feelings of anxiety can occur all the time for no apparent reason with lots of worrying thoughts and physical symptoms such as a racing heart, feeling breathless, knot in your stomach, increased sweating. This is called Generalised Anxiety. Sometimes these symptoms can occur without warning for short periods of time for no apparent reason. These are called Panic attacks. Sometimes the feelings of aniety can be brought on by specific things such as a fear of heights or crowded places or spiders etc. These are described as Phobias.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde.

Bipolar disorder affects around 2% of people in Scotland. It is a serious condition characterised by extreme and persistent mood episodes, or swings in mood – ranging from periods of mania with overactive and excited behaviour, an elevation of mood and increased energy and activity, to depression, with lowered mood, decreased energy and activity. These episodes can usually last for weeks to months at a time.

People can also experience problems when they are feeling elated, where they develop ideas that are not shared by others, often related to unrealistic views or optimism, which can drive risk-taking behaviour. This can result in substantial distress for the person with bipolar and their family or friends. In addition, people can sometimes hear or see things that are not there when feeling either elated or depressed and this can often become quite distressing. Most individuals with Bipolar disorder experience a mix of depressive and manic episodes over time. People who suffer from repeated episodes of mania only are comparatively rare. Between these episodes, people with bipolar disorder can enjoy periods of relative stability, whereas some people can experience more ongoing, intermittent difficulties with mood.

After a mood episode, up to 50% of individuals with Bipolar disorder are likely to have a further episode within one year and more than 70% will relapse within four years.

More Information

Assessing Bipolar Disorder

The assessment of bipolar disorder is complicated and there can be significant delays in individuals receiving a diagnosis due to the complexity involved. Research suggests that it can take on average 6 years for a person to receive a diagnosis after the person first experiences symptoms.

Bipolar experiences are typically initially understood within the context of depression. This is usually due to the fact that depression is the initial mood episode that brings individuals to seek support from mental health services. On the contrary, episodes of hypomania are often experienced as relatively positive by individuals with bipolar symptoms (especially when they occur in the context of recurrent depression) and they are often not raised as a problem during initial encounters with services. In addition, difficulties related to hypomania are often difficult for mental health services to separate from ‘normal’ behaviour or attributed to other potential causes, such as alcohol or substance misuse.

Mania

Manic episodes usually begin abruptly and last for between two weeks and four to five months. You might experience some of the following symptoms (though it is unlikely you will experience all of them).

Signs and symptoms of mania:

  • Increased energy, activity, and restlessness
  • Excessively high, overly good, euphoric mood
  • Extreme irritability
  • Racing thoughts and talking very fast, jumping from one idea to another
  • Distractibility, cannot concentrate well
  • Little sleep needed
  • Unrealistic beliefs in one’s abilities and powers
  • Poor judgement
  • Risky behaviour
  • Spending sprees
  • A lasting period of behaviour that is different from usual
  • Increased sex drive
  • Abuse of drugs
  • Provocative, intrusive, or aggressive behaviour
  • Denial that anything is wrong
Hypomania

People with bipolar disorder can experience a milder form of mania known as hypomania (“under mania” or “less than mania”). As the term suggests, the symptoms of hypomania are often less severe and they can resolve after a shorter period of time. However, these episodes can also contribute to the distress experienced by people with bipolar disorder and their families and friends, depending on the circumstances and how they are managed.

Depressive Episodes

Episodes of moderate or severe depression are often more readily recognised by people with bipolar disorder and their families. When people are depressed they can often find it very difficult to manage day-to-day commitments, such as work, relationships, or family events. Depression can make people feel as if they are not worthy of any assistance. This in turn can make it difficult for people to ask for help, which can contribute to further feelings of hopelessness and a sense that things will never get better. When people are feeling very low, they can experience recurrent thoughts that life is not worth living and have thoughts of harming or killing themselves.

If you have had recent thoughts of harming yourself or taking your own life, please see our ‘Urgent Help’ page.

Signs and symptoms of depression

  • Lasting sad, anxious, or empty mood
  • Feelings of hopelessness or pessimism
  • Feelings of guilt, worthlessness, or helplessness
  • Loss of interest or pleasure in activities once enjoyed
  • Decreased energy, a feeling of fatigue, or being slowed down
  • Difficulty concentrating, remembering, or making decisions
  • Restlessness or irritability
  • Sleeping too much or can’t sleep
  • Change in appetite and/or unintended weight loss or gain
  • Chronic pain or other persistent bodily symptoms not caused by physical illness or injury
  • Thoughts of death or suicide, or suicide attempts
Mixed state

In a ‘Mixed State’, individuals can experience both depression and agitated or elated mood at the same time, with an increase in risk-taking and impulsive ideas as outlined above, occurring at the same time as ideas related to low self-worth and hopelessness about the future. Individuals experiencing a ‘Mixed state’ are in particular, at increased risk of suicide.

Episodes of depression tend to last longer. Like mania or hypomania, episodes of depression often follow stressful life events or other emotional upsets but the presence of such stress is not essential for the diagnosis. It is important to note that depression is very treatable. Please see the link to our depression page for further information. There are particular considerations that are required in the treatment of bipolar depression that you can discuss with your GP or Psychiatrist.

What helps

There are ways that you can help you to manage your Bipolar Disorder. Follow the links below to download information about staying well, noting when things are deteriorating and how to cope when not feeling at your best due to your Bipolar Disorder.

It is important to understand that many people are able to self-manage their lifestyle to stay well and to minimise factors that can prevent a Bipolar episode from starting.

Getting help as soon as possible is often key to a speedy recovery, therefore it is vital to be able to identify your early warning signs of a Bipolar Disorder episode.

It is useful to have things to do when you become unwell, and have some general coping strategies in place to lessen the impact of the Bipolar episode.

Should you feel in low mood or depressed there are some depression specific coping strategies, there are also mania specific coping strategies for when your mood is elevated.

Some people are prescribed medication as part of maintaining their well being, or for the treatment of the symptoms experienced as a result of either the low or elevated mood associated with Bipolar Disorder.

Community Mental Health Team Support

Community Mental Health Teams (CMHT) work together with families, carers, and other agencies involved and offer and oversee a range of interventions to help people with Bipolar disorder. In addition to interventions from doctors and psychologists, CMHTs offer input from community psychiatric nurses and occupational therapists. Input offered includes help and support regarding medication, physical health monitoring related to this, advice and direction about mood monitoring and self management, emotional support and coping strategies work, and relapse prevention.

Psychological Therapies

If the information and strategies outlined here are not sufficient for you, it may be that a referral for psychological therapy could be helpful. You can discuss referral for assessment with your GP, Psychiatrist, or key worker within the CMHT.

Psychological therapies (talking therapies) can help people with Bipolar disorder by helping to treat episodes of depression, reduce vulnerability to relapse, and can help people to learn to identify and manage their symptoms of depression and mania early, before they become severe. Our mood states can be driven by our temperaments, the experiences we have in life, and our understandable responses to these experiences. For some people, bipolar disorder is influenced by high ambitions or extreme perfectionistic standards.  For others, they find it difficult to live with the fear and worry about mania or depression returning after they have recovered. For some others, anxiety or previous experience of trauma may impact our mood. An assessment with a clinical psychologist and an individualised understanding of your mood episodes may identify difficulties that could be addressed in psychological therapy.

Crisis Self-Management

Helpful rules to follow during a crisis:

  • Third party agreement: This refers to an agreement not to make any significant decisions without consulting a third party. The third party is best being your partner or doctor.
  • Coping steps: This is a step wise plan of action if you feel you are not coping. It might involve speaking to your partner, making an appointment to see your doctor, beginning your self-monitoring and self-regulation.
  • No decisions rule: This is a self-applied rule not to make any decisions without prior consultation.
  • Two day delay: This involves agreeing not to do anything for at least two days. If something is a good idea now, it will still be a good idea in 2 days time.

There may well be additional things you have done in the past that are helpful. Try to remember to write them down as reminders:

1.

2.

3.

4.

Organisations who could help

Bipolar Scotland is a leading service user group for people who experience bipolar disorder. They actively support self-management approaches within their membership and deliver Self-Management Training Courses. They are active across Scotland and it is very likely there is a regular meeting of this group in your local area. Contact details are available on their website for further information. Self management approaches often involve learning to understand individual mood variation, responses to stress and identify ways of dealing with ups and downs of mood that are helpful or unhelpful. In terms of learning about bipolar disorder, Bipolar Scotland’s ‘Bipolar Disorder – The Essential Guide’ is a useful place to start.

Additional Information

Advance Statements 

Occasionally, people who experience symptoms of bipolar disorder require to access acute mental health care services. Advance statements can be used to specify what forms of treatment you would want to have or avoid during such episodes of care. These are particularly important for individuals who are admitted to hospital in situations where they are deemed to have temporarily lost capacity under the terms of Mental Health (Care and Treatment) (Scotland) Act 2000, further information is available in the Your Rights section.

Looking after someone with…Bipolar Disorder

Bipolar Disorder is often a long-term, relapsing/remitting condition. Seeing someone you care for become unwell during a relapse of bipolar can be very distressing.  People who have bipolar disorder usually have a good understanding of their condition. However, during manic episodes, and severe depression, this insight is often lost.

Seeing someone you care for go through a manic episode can be highly distressing for family, friends and carers. They will act out of character and behave in a way that causes distress to those around them.  It may be possible to talk about this when the episode has been treated and the person is well again.

People with bipolar disorder and their families benefit from maintaining an as stress-free family environment as possible. This is equally important when the person with bipolar disorder is doing well in life as a recurrence of depression or mania can be linked to positive, mixed, or negative life events / scenarios impacting on a whole family. Families who develop a sensitive awareness of bipolar disorder and the person’s individual triggers, early warning signs, and preferred responses from family members can have a significant role in supporting the person with bipolar disorder whilst ensuring family members do not become over-whelmed. Practicing communication skills and how to swiftly solve problems / achieve important goals in the family can be very helpful.

Additional Carer information and advice is available from the Meriden Family ProgrammeMIND, and Bipolar Scotland

It can be exhausting looking after an unwell relative or friend. Try to take some time away from caring, if possible.

You may also find support and understanding from:

  • Your own GP
  • A local Carers Group
  • On-Line Carers Groups

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site  

BSL – Bipolar Disorder

NHSGG&C BSL A-Z: Mental Health – Bipolar Disorder

Bipolar disorder is a mental health problem that affects your mood. It is characterised by prolonged changes to the person’s mood. These usually last several weeks or months and are far beyond what most of us experience. The person might experience:

  • Periods of feeling very low and down
  • Periods of feeling excessively happy and energetic for no apparent reason
  • Sometimes the person may have unusual experiences, strange thoughts or might behave out of character during these periods.

These episodes would usually affect the persons day to day life and make it difficult for them to function as they normally would.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde.

Experiencing a bereavement can affect you in several ways:

  • You may feel sad and cry easily.
  • You might feel numb and disconnected from other people.
  • You might feel empty and that life is meaningless.
  • Your appetite may change and you might eat more or less than usual.
  • Your sleep pattern might change and you might sleep more or less than usual.
  • You might have difficulty concentrating or completing tasks.
  • You might not enjoy activities that you previously enjoyed.
  • You might spend long periods of time thinking about the person who died and find memories are triggered easily or unexpectedly.

Common feelings include (from NHS Choices):

  • Shock and numbness (this is usually the first reaction to the death and people often speak of being in a daze).
  • Overwhelming sadness.
  • Tiredness and exhaustion.
  • Anger, for example towards the person that died, their illness, others, or God.
  • Guilt, for example about feeling angry, about something you said or didn’t say, or not being able to stop your loved one dying.
  • Relief, perhaps if the person who has died was ill or suffering.

In addition:

  • You might find that you are drinking more alcohol than you usually do or using illicit or prescription drugs.
  • You might have a sensation of hearing, smelling, or seeing the individual who has died.
  • You might experience grief as physical pain.

More information

What helps
  • Give yourself some time. It is natural to feel sad and distressed following a bereavement
  • Be kind to yourself and give yourself some time to heal
  • Talking to others and spending time with friends and family can help
  • It is important to remember to look after yourself and stick to your normal routines as much as possible including eating regular meals and sleeping
  • Try and include regular exercise
  • Try to include some enjoyable activities in your life. Do whatever feels manageable in terms of getting out, taking part in hobbies, and socialising. Some people can feel guilty for taking part in enjoyable activities but it is important to look after your own well being
  • When you feel ready, find ways to remember the person in your life. You might want to talk about them with others who knew them well and can help you hang onto good memories. Don’t be afraid to keep photos around and it might help to put together a box or album of memories
  • You might want to find a way to mark the life of the person who has died.
What to expect following a bereavement

There is no right or wrong way to feel following bereavement and all these feelings are normal. Feelings can be intense or overwhelming in the early stages and can get in the way of everyday life.

Although bereavement is not something you “get over”, for most people, with time and support the pain becomes gradually easier to live with.

Bereavement is sometimes considered to have four general stages:

  • Accepting the loss is real
  • Experiencing the pain of grief
  • Adjusting to life without the person who has died
  • Putting less emotional energy into grieving and putting it into something else or something new.

These stages are just a rough guide. You might not go through all the stages in this order, or find you start to feel better, then go through a period of feeling somewhat worse for a while. Sometimes special occasions such as birthdays, Christmas, or the anniversary of the person’s death can bring difficult feelings to the surface.

Some bereavements can feel more difficult and people can struggle to come to terms with their grief. This can be more common if:

  • There is stigma attached to the death (for example suicide or following drug or alcohol addiction)
  • The death was unexpected or you thought you would have more time with the person
  • The death was with someone you were particularly close to or cared for
  • You had a difficult or complicated relationship with the person who has died
  • The loss is of a child, including children who pass away before, during, or shortly after birth
  • You have other difficulties in your life that are making it hard for you to process the death.

Signs you might need additional support:

  • You feel you can’t go on without the person who died or wish you were with them
  • The emotions feel intense and out of your control such as crying all the time, feeling anxious and panicky, or getting angry and irritated with other people
  • You are neglecting yourself i.e. not eating properly or looking after yourself
  • Struggling to get out of bed and do the things you usually do such as work, study, or look after your children.

Initially following a bereavement you might find it difficult to work or lack the energy and motivation to do things. You might find yourself withdrawing from other people to avoid discussing your bereavement or reminders of the person who died. If it has been at least six months, or maybe even years, after the bereavement and you still feel this way, or feel that it is having an impact on your mood you may need additional support to help you process your loss. You can discuss this with your GP, or see the section ‘Further information and support’ below.

Supporting someone following a bereavement

You can have a very important role in supporting a friend or family member going through a bereavement. The most important thing you can do is to be available and ready to talk. Grief and loss can feel upsetting to talk about, and sometimes people can shy away from this topic or avoid those who are bereaved for fear of saying the wrong thing. Try to stay in contact and be willing to listen when your friend or family member talks about the person who has died. Remember they are not asking you to solve these problems, often listening is enough. If your family member is distressed or irritable, try not to take this personally.

Remember that birthdays and anniversaries may be a difficult time and they might appreciate extra support at these times.

Also be careful to look after yourself, even if you did not know the person who has died well, it can be emotionally hard to support someone who is grieving.

Further information and support

What is Autism?

Autism is a neuro-developmental disorder, affecting around 1% of the population. Autism is highly variable in its presentation. People with autism differ from one another in how they relate to the world around them and in the severity of the difficulties they experience.

This variability is reflected in the terms we use to describe autism. Autism Spectrum Disorder (ASD) is an umbrella term for a number of different forms of autism, including Childhood Autism and Asperger Syndrome. On this website the term ‘Autism Spectrum Disorder’ or ‘ASD’ is used to encompass all forms of autism.

All types of Autism Spectrum Disorder have several features in common. ASD is a lifelong condition that affects how a person relates to other people and how they make sense of the world around them.  Difficulties associated with ASD will be evident in childhood, even if no diagnosis is given at that time. Many people are now diagnosed with autism in childhood. The general consensus is that it is most helpful if people are diagnosed when they are younger, as appropriate advice and support can then be offered to children, their families, and schools.  However, for some people, the presenting difficulties may be subtle or more complex and in such situations diagnosis may not be made until adulthood.

People with autism experience difficulties in the following key areas:

  • Social communication – difficulties may include using and understanding verbal and non-verbal communication (including words, gestures, facial expressions and tone of voice)
  • Reciprocal social interaction – difficulties include recognising and understanding your own and other people’s feelings and intentions, and managing social exchanges
  • Social imagination – difficulties may include being able to adapt your behaviour to the situation, difficulties attributable to inflexible, restricted or repetitive patterns of thinking or behaviour, and difficulties coping with change

More Information

How does it feel to have Autism?

Autism can create significant challenges for people, their families, and friends. 

People with ASD experience problems with social interaction. They may find it difficult to use and to understand non-verbal communication, such as gesture, facial expression and posture, and may find it difficult to use eye contact to regulate interaction. Often, people with ASD tell us that they find it difficult to establish and maintain relationships with other people, or they may find it very difficult to join in with groups of people. Some people with ASD are not particularly motivated to interact with other people. When engaged in social exchanges, people with ASD may find it difficult to know what to say, or how to respond to other people. Difficulties like these can lead to some people feeling anxious about interacting with other people or becoming socially isolated.

Communication can also be an area of difficulty for people with ASD. Some people fail to develop meaningful spoken language. For others, the level of difficulty is subtle. For example, some people may speak very fluently but have a very narrow range of conversational topics, or have difficulties understanding and using abstract or ambiguous language such as metaphors, or sarcasm. Again, for many adults with ASD, these difficulties can make social interaction and communication more challenging. 

The third area of difficulty experienced by people with ASD relates to flexibility of thought and behaviour. People with ASD may experience difficulties because of their level of adherence to repetitive activities or routines. They may find change to routines or planned activities very difficult to accept and tolerate. They may have restricted interests, which can be particularly intense.  Some people may show repetitive motor mannerisms, such as hand-flapping or rocking.

Some people with ASD experience sensory difficulties. They may find it very difficult to tolerate certain types of noise, certain visual stimuli (e.g. bright overhead lighting), or certain smells, tastes or textures.  Exposure to such stimuli can cause people to feel very overwhelmed, and they may struggle to cope in environments where such stimuli are present. They may seek to leave, become distressed and upset or angry, or freeze.

Many people with ASD also describe difficulties with organisation, planning and decision-making. They can find it difficult to attend to activities, or to switch attention between activities.

Taken together, these difficulties can make the demands of everyday life very challenging for people with autism. Some people do learn to negotiate many social situations and social exchanges, but may find the process of doing so exhausting and, at times, overwhelming. 

People with autism can also experience difficulties due to mental health problems. Indeed, there is evidence to suggest that they are more likely than others to experience such problems. This is understandable when we consider the additional challenges they often face in everyday life. People with ASD may experience any type of mental health problem, including anxiety, obsessive compulsive disorderdepression and eating disorders

Approximately 30% of people with ASD also have a diagnosis of learning disability. People who have a learning disability in addition to autism are likely to need some support to manage the tasks and activities of everyday living. In most circumstances, adults who have a diagnosis of learning disability will access support, including diagnostic assessment for autism, through local specialist services for people with learning disabilities.

Of course, some people with autism find that their way of viewing the world can be advantageous in some settings. Some people with autism report that their ability to focus intensely on a topic of interest can be very useful. Similarly, there are tasks and activities in which a logical, systematic approach to problem-solving is very valuable. 

Living with…Autism

ASD is a pervasive disorder and, as such, it usually impacts on multiple aspects of everyday life. There is no cure for ASD, but support and information can help people to manage the condition. The support required varies from person to person according to the difficulties they experience. The difficulties experienced in each domain may also increase or decrease over time, depending on the person’s circumstances.

Understanding the condition can be very beneficial for people with ASD. Knowing why certain situations are stressful and more difficult can help people to prepare for particular experiences or events, and can help them to consider the coping strategies they might employ to manage the situation. Structure and routine can be very useful for people with ASD. Some people find it very helpful to plan their days and weeks carefully. Some people also find it helpful to intersperse periods of social activity with periods of time in which they can be alone, to rest or enjoy an activity they find relaxing. Learning how to recognise and manage stress and anxiety can also be very useful. 

If you have ASD and are experiencing difficulties with anxiety, depression, or other mental health problems, it is important to seek support with these difficulties from within mental health services. There are a number of suggestions for sources of support under the ‘Find out more’ section of this page.

Find out more

Pathways to diagnosis

If you think that the difficulties you are experiencing might be due to autism spectrum disorder, you should discuss this with your GP. If you are already linked with another mental health service, you could discuss it with professionals in these services too. It can help to consider the following questions before you approach these discussions:

  • What difficulties do you experience in social interaction with other people?
  • What difficulties do you experience in communicating effectively with other people?
  • What difficulties do you experience because of inflexible, or restricted, patterns of behaviour (for example, consider any unusually intense interests, hobbies or routines, or difficulty coping with change)
  • Is there evidence of difficulties in these domains in both childhood and adulthood?

You may find this questionnaire, known as the AQ-10, helpful in considering whether the difficulties you experience may be attributable to ASD.

Your GP, or other healthcare professional, will help you to consider whether it would be appropriate to pursue diagnostic assessment. If you are already involved with mental health services, it may be that professionals within these services will be able to offer the diagnostic assessment.  Alternatively, your GP, or mental health professional, may refer you to the NHS GG&C Adult Autism Team for assessment.

The NHSGGC Adult Autism Team works to support adults (over eighteen years old) with an autism spectrum disorder (ASD). The team offers a diagnostic service, and post-diagnostic information and support for people who have received a diagnosis. The team also offers training and support to other services working with people with ASD.

While the diagnosis of ASD may be helpful, if some of the difficulties you experience are due to co-existing mental health problems, it is likely that you will require support to manage these too.

Not everyone who experiences difficulties that may be associated with ASD wants, or needs, to pursue a formal diagnosis.  For some people, gathering information, particularly with regard to strategies for coping and self-management, will be sufficient.

Support after diagnosis

If you have already received a diagnosis of ASD, the NHSGGC Adult Autism Team (AAT) can support you to increase your knowledge and understanding of the condition, and develop strategies for coping with and managing the associated difficulties. This support is usually offered in a group setting. You can ask your GP, or another mental health professional, to refer you to the AAT for this type of support.

If you are already receiving support from a mental health service, this may continue after diagnosis according to your assessed needs.

Other sources of support

Autism is a pervasive condition, which can impact on many aspects of everyday life. As such, an NHS-based service is not always the best service to respond to all difficulties associated with ASD. Some difficulties may be better addressed by social work services, or third-sector organisations. Some suggestions for helpful organisations are provided below. 

Information

Recommended reading

  • ‘The autistic spectrum: a guide for parents and professionals’ by Lorna Wing (ISBN#1841196746)
  • ‘Asperger’s syndrome: a guide for parents and professionals’ by Tony Attwood (ISBN#1853025771)
  • ‘Autism: the facts’ by Simon Baron-Cohen and Patrick Bolton (ISBN#0192623273)
  • ‘Asperger’s and Girls’ Featuring Tony Attwood and Temple Grandin (ISBN#978-1932565409)
Looking after someone with…Autism

Information for carers

Carers provide substantial and regular unpaid care for another person, such as a relative, partner or friend. Supporting an adult who has ASD can be difficult. Often carers know the person with ASD very well and may do many things to support the person and mediate the impact of autism on the person’s everyday life. It is important that carers also seek information and support for themselves when this is required. 

All carers are entitled to a Carer’s Assessment if they choose. This is usually completed by social work services or carer’s organisations. This can help carers consider what their own needs might be in order to continue to provide care. 

Support for carers can come from a variety of sources. Some local authorities may offer carers’ support groups where you may be able to meet other carers, share experiences and suggestions, and find out information about autism. It is important that carers look after their own physical and mental health needs also. 

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site.

Real life stories

Personal Accounts

  • ‘Fingers in the Sparkle Jar: A Memoir’ by Chris Packham (ISBN#978-1785033506)
  • ‘Look Me in the Eye: My Life with Asperger’s’ by John Elder Robinson (ISBN#978-0091926335)

Alcohol and drug problems are very common. If you use drugs and/or alcohol and they are causing problems in other areas of your life such as your job, relationships, health, finances or emotional well-being, then this may be an issue for you.

Someone has an addiction or addictive behavior when doing, taking or using something gets out of control to the point where it could be harmful to them. If you are worried that you may have a problem with addictive behavior, you will find more information on NHS Inform pages specifically about problems with drugs or alcohol.

If you think you may be drinking excessively you can get information on alcohol-misuse including tests to assess your alcohol use and information on the risks of alcohol misuse. There are many other common addiction problems such as gambling, and nicotine, and it’s possible to be addicted to just about anything, including: work, the internet, sex, and shopping.

More Information

Below you will find a range of information on frequently asked questions about alcohol and drug problems.

What can I do about it?

If you think you have an alcohol or drug problem, there are lots of ways you can seek help. You could see your GP for advice or contact an organisation that specialises in helping people with alcohol and drug problems. There are local treatment services that will see people even if they’re not ready to stop. These services encourage people to talk about their alcohol or drug problems and what help they might be looking for. 

Groups such as Alcoholics Anonymous and Narcotics Anonymous help many people deal with addictive behaviours.

What causes alcohol or drug problems?

There are many reasons why people can develop an addiction. Addictive behaviour, including using alcohol or drugs, can be a way of trying to forget about problems/worries or block out distressing thoughts or memories. Many people who have become dependent on alcohol or drugs have had traumatic life experiences and might be struggling to deal with the effects of these. Unemployment and poverty can increase the risk of someone developing addictive behaviour, along with stress and emotional or professional pressure. Environmental factors, such as being around other people with addictions, are also thought to increase the risk.

Drugs and alcohol are substances which affect the way you feel, both physically and mentally. These feelings can be enjoyable and create a powerful urge to use the substances again. When there is addictive behaviour, not having the substance causes withdrawal symptoms, or a “come down”. Because this can feel intolerable, it’s easier to carry on using the substance, and so the cycle continues. Often, using these substances gets out of control because you need more and more to satisfy a craving and achieve the “high”.

How can alcohol or drug problems affect you?

As addiction problems become more serious, attention is increasingly focused on obtaining and using alcohol or drugs, with a loss of interest in other aspects of life, including recreational activity, friends and family. In the case of using drugs and alcohol, an addiction can also have serious psychological and physical effects.

How can you get help for drug problems?

If you have a problem with drugs, there is a wide range of services that can help. Some of these services are provided by the NHS, and some are specialist drug facilities run by charities and private organisations. If you have a problem with drugs, you have the same entitlement to care as anyone coming to the NHS for help with any other health problem. With the right help and support, it’s possible for you to get drug free and stay that way.

A good place to start may be to visit your GP. Your GP can discuss your concerns with you, assess the nature of your problems, and help you choose the most appropriate treatment. They might offer to treat you or refer you to your local specialist drug service. Many drug treatment services accept self-referrals, so if you’re not comfortable talking to your GP, you might be able to approach your local drug treatment service directly.

You can find information about local drug treatment services on the FRANK website. If you’re having trouble finding the right sort of help, call the Frank drugs helpline on 0300 123 6600. An adviser can talk to you about the different options.

If you are seen at your local drug treatment service, first of all, you will be assessed. If treatment is appropriate for you, you will then be allocated a keyworker. Your keyworker will help you organise the treatment you need and develop a personalised care plan with you, and will be your first point of call throughout your treatment. You’ll see your keyworker for regular one-to-one sessions during your treatment.

Outside the NHS, there are many voluntary sector and private drug and alcohol treatment organisations that can help you. As well as providing residential rehab centres, voluntary organisations also offer various community services. These include structured day programmes, outreach and harm reduction services, counselling services, aftercare, and housing support services. These organisations will usually be linked to NHS services in your area.

How can you get help for alcohol problems?

Realising you have a problem with alcohol is the first step to making changes to your alcohol use, but it is often the hardest one.  You may need help if: 

  • You always feel the need to have a drink.
  • You get into trouble because of your drinking.
  • Other people warn you about how much you’re drinking. 

A good place to start can be with your GP, and discussing with them how much you drink will help you work out together what support you might need.  Your GP may refer you to a local community alcohol service. You can ask about free local support groups, day-centre counselling and one-to-one counselling.

If your body has become dependent on alcohol, stopping drinking overnight can be life-threatening, so get advice about cutting down gradually. You may be prescribed medication such as chlordiazepoxide, a sedative, to help with alcohol withdrawal symptoms. Alcohol withdrawal symptoms can range from not sleeping, agitation, anxiety, sweating and tremors, right through to vomiting, diarrhoea, hallucinations and seizures.

Cutting down and stopping drinking is often just the beginning, and most people will need some kind of help to stay alcohol-free in the long term. Getting support – beyond family, friends or carers – is crucial to understanding and overcoming the issues that are connected to your drinking.

How can you support someone with a drug problem?

If you are supporting someone who is using or trying to come off drugs, there are some common issues you’re likely to face. It can be hard to accept that the person was or is taking drugs to begin with, and when the reality sinks in, it can be difficult to know what to do first.

If you want to know where to get help FRANK is a good place to start. They have a 24-hour helpline (0300 123 66 00) and website that provide in-depth information about drugs, and advice about drugs-related services.

Your GP can talk to you about the kinds of treatment options and services available. They should be able to give you information about the effects of the drugs the person you’re caring for has been taking, including the signs of withdrawal. They will also be able to give details of local support groups.

If you are worried that someone you care for is at risk of an overdose with opiates, you may want to know about recognising overdose and knowing what to do in these situations.

You may not see yourself as a carer or someone with needs of their own. But caring for someone using or coming off drugs can be demanding. If you have someone in your household who is unable to stop using drugs, it can be very stressful, upsetting and frustrating.

Even if your loved one accepts that they have a problem and decides to stop taking drugs, you may need to help them get through the withdrawal and recovery period. There may be some difficult, emotional times during this process.

Sometimes the best option for carers is to let their loved ones face the consequences of continuing their drug use. This can be tough as it’s natural to want to rescue someone from the harmful effects of their addiction, such as poverty or ill health.

But there are lots of support organisations that can help you care for someone using or coming off drugs. Carers often find that talking to someone who knows what they’re going through is really helpful. This could be through workshops, one-to-one sessions with a specially trained counsellor, or simply talking to other carers.

Adfam – A national organisation working with and for families affected by drugs and alcohol. It can advise you about financial worries, understanding how to help during different stages of recovery, and coping with difficult behaviour

Families Anonymous run local support groups for the family and friends of people with a current, suspected or former drug problem. Helpline number: 0845 1200 660 (calls costs up to 8p per minute, plus your phone company’s access charge per minute)

“The stigma will affect both the alcoholic and the carer,” says Lindon. “It can affect their ability to ask for and get help.”

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site

How can you support someone with an alcohol problem?

If you are a carer for someone with an alcohol problem, finding help can be a frustrating experience, and it may be a struggle to get the recognition and support you’re entitled to. “They have not always been perceived as ‘legitimate’ carers,” says Drew Lindon of The Princess Royal Trust for Carers (now the Carers Trust). “But it is clear from the legislation and the National Carers Strategy that people who take care of problem drinkers should be recognised as carers,” he says.

The shame often associated with alcohol problems, as well as difficulty accepting that there is a problem, can be an obstacle to getting help. “The stigma will affect both the alcoholic and the carer,” says Lindon. “It can affect their ability to ask for and get help.”

Being a carer is hard work and, with so much to do, it can be difficult to find quality time for yourself. Staying well and healthy increases your ability to look after someone. But nobody can plan for every eventuality and we all get ill sometimes. Read about carers’ breaks and respite care for advice on getting help with caring for someone and breaks from caring. “Carers for alcoholics need to be seen as partners in care,” says Lindon. “They are an essential part of the care and treatment process. They need and deserve support for themselves. “If carers are not supported and their health suffers, who will support the person they are caring for? The health and social care system would not survive without carers’ support.”

Al-Anon Family Groups offer support to people affected by someone else’s drinking. These groups meet weekly to offer understanding and encouragement, and share their experience of dealing with their common problem.

Adfam Adfam is a UK charity working to improve life for families affected by drugs and alcohol. Email: admin@adfam.org.uk

Further information for carers is available on the NHS Greater Glasgow and Clyde carers site

Where to get further information and support?

Scottish Drug Services – An online Directory to help people find information on all drug treatment and rehabilitation services in Scotland.

Crew – A drugs charity based in Edinburgh providing non-judgemental, relevant information, advice and support. You can chat online confidentially or join in the conversation on their forums.

Scottish Drugs Forum – Providing information on drugs and harm reduction, including information about specific drugs.

SMART Recovery (SMART) – A science-based programme to help people manage their recovery from any type of addictive behaviour. This includes addictive behaviour with substances such as alcohol, nicotine or drugs, or compulsive behaviours such as gambling, sex, eating, shopping, self-harming and so on. SMART stands for ‘Self Management And Recovery Training’.

Gambling

Nicotine

Cognitive Behavioural Therapy

The leaflet ‘Alcohol, Drugs and Addiction’ has information to help the carers of people with alcohol and drug problems (substance misuse)

Scottish Families Affected by Alcohol & Drugs (SFAAD) provide information, help and support for families across Scotland who are affected by alcohol or drug misuse and raise awareness of the issues affecting them.

  • SFAAD helpline telephone no: 08080 10 10 11 

Family Addiction Support Service (FASS) is a confidential support service for parents, spouses, partners and adult family members affected by or concerned about a loved one’s drug or alcohol use. They offer support, counselling, advice and information.

  • FASS telephone no.: 0141 420 2050 Mon to Fri 9am to 4pm
BSL – Addictions

NHSGG&C BSL A-Z: Mental Health – Addictions

Someone has an addiction or addictive behaviour when doing, taking or using something gets out of control to the point where it could be harmful to them.

Alcohol and drug problems are very common. If you use drugs and/or alcohol and they are causing problems in other areas of your life such as your job, relationships, health, finances or emotional well-being, then this may be an issue for you. There are many other common addiction problems such as gambling, and nicotine, and it’s possible to be addicted to just about anything, including: work, internet, sex, shopping.

Please note that this video is from a range of BSL videos published by NHS Greater Glasgow & Clyde.

Information about the Mental Health (Care & Treatment)(Scotland) Act 2003 and what it may mean for you

The Mental Health Act is the piece of law which ensures those with a mental disorder receive appropriate care, as well as help to manage their safety when vulnerable. Most people who have a mental disorder understand the need for help and treatment, but for some this ability is impaired. The Mental Health Act can be used by experienced medical professionals only when specific criteria are met. A key principle of the Act is reciprocity, that is as well as the expectation the individual will receive care, Mental Health professionals must attempt to ensure that the views and wishes, of the individual, are expressed and heard at the time.

There are many safeguards within the Act, including the right of appeal. All individuals under the Act will be informed of their rights and be entitled to free legal representation. Further safeguarding is provided by the Mental Welfare Commission in Scotland who monitors use of the Act, ensures individual care is lawful and respects individuals’ rights.

Named Persons

Adults over 16 can choose someone as a ‘Named Person’ to act on their behalf should they be under the powers of the Mental Health Act. This person has the same rights as the person being treated to be notified of, attend, and be represented at a Mental Health Tribunal hearing.  

This is a very important and significant role and it is best to choose someone who knows you well and can be effective at these hearings in order to get the best out of this safeguard. 

The Right to Make an Advance Statement

You have the right to make a written statement about your mental health treatment when you are mentally well and have capacity. This must be taken into account by the services treating you and is important at a mental health tribunal (see below). 

Many people have strong opinions about their mental health treatment and it is important to know that the people treating you when unwell often do not know you or do not know you as a well person. An advance statement is your opportunity to tell mental health services your views about your treatment so that they are better placed to help you.

The Mental Health Tribunal

The Mental Health Tribunal system is a third party arbiter that is involved in any disagreements relating to a person’s mental health treatment as well as decisions about Compulsory Treatment Orders. People receiving treatment, or their named person, have the right to challenge compulsory treatment orders and aspects of a person’s care. In addition, the Tribunal must listen to your views and make any decisions fairly and impartially.

Compulsory Treatment Orders

In some instances, there is a need to provide treatment when a person is unable to consent, or against the will of an individual. This can only happen with a Compulsory Treatment Order. These orders (often shortened to CTO) have to be granted by a Mental Health Tribunal. The patient, a named person and the patient’s primary carer are entitled to be heard by the Tribunal. The patient and the named person are entitled to free legal representation for the tribunal hearing.