Pregnancy and Newborn Screening Results Support

NHS inform provides information for the public about sickle cell and thalassaemia disorders. Scroll down the each programme pages for access to translated information, Easy Read, and explanatory videos.

• About sickle cell disease
• Screening for sickle cell and thalassaemia disorders

See also:

• Sickle cell and thalassaemia screening: your baby carries a gene for sickle cell – GOV.UK

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• Understanding haemoglobinopathies
• UK Thalassaemia Society
• Sickle Cell Society

• NSD Pregnancy and Newborn Screening Programmes in Scotland
• Healthcare Improvement Scotland Pregnancy and newborn screening standards – to be updated
• GGC Paediatric Guidelines on Newborn Blood Spot Screening

If a patient is a carrier, give the appropriate information leaflets. Copies of leaflets can be download via the links below:

• UK Government guidance: Understanding Haemoglobinopathies
• Information for fathers invited for a screening test for sickle cell disease and thalassaemia major
• Sickle Cell (HbAS) carrier
• Haemoglobin C carrier
• Haemoglobin D carrier
• Haemoglobin E carrier
• Haemoglobin Lepore carrier
• Haemoglobin O Arab carrier
• Beta Thalassaemia carrier

• NHS GGG Clinical Genetics
• Telephone: 0141-354 9201 (receptionist)/0141-354 9229 (secretary) Email: geneticsreferrals@ggc.scot.nhs.uk