What is a learning disability?
Within Greater Glasgow & Clyde there are approx. 5700 adults with learning disabilities. A learning disability is a significant, lifelong, condition that starts before adulthood. It affects a person’s development and means they need help to:
- Understand information
- Learn skills
- Cope independently
Learning difficulties, such as dyslexia, ADHD, dyspraxia and speech & language difficulties are not defined as a learning disability due to the specific nature of their developmental delay.
Learning Disability and Discrimination
People with learning disabilities represent a diverse group. Historically, people with learning disabilities lived in hospitals. Then, in 2000, policies were introduced which advocated that people with learning disabilities should be supported to live in their local communities and have equal access to employment opportunities & health services. Despite this shift towards independent community living, people with learning disabilities are one of the most disadvantaged groups within Scotland.
90% of people with a learning disability have described an experience of bullying or harassment, with 32% experiencing this daily. The recent high profile case of Fiona Pilkington was an example of the result of long term abuse and harassment.
65% of people with a learning disability would like a job. In 2010/2011, 6.6% of people with a learning disability were in paid employment, the majority of whom worked less than 16 hours a week. This is significantly less than in the working age population (77.3 %) and the disabled population (47.4 %), NHSGGC is one of the partners involved in running an award winning learning disability employability programme called Project Search.
People with learning disabilities die younger than the general population – on average 13 (for females) or 20 (for males) years younger, with many of these deaths being from preventable causes.
Learning Disability and Other Protected Characteristics
People with a learning disability will also possess other protected characteristics and their experience of inequality will be made worse as a result.
Protected characteristics – characteristics that are protected by law, such as Disability – are listed on our home page and include sex, age and race.
Gender-based Violence & Women with Learning Disabilities
Research tells us that disabled women and girls are more susceptible to gender-based violence than non-disabled women and girls. Women with a learning disability are at greater risk of sexual abuse and are more likely to experience violence from perpetrators that are not partners, most notably other service users and men with learning disabilities.
Dependency on care, attitudes of staff and carers, poverty and isolation can make women more vulnerable or make it more difficult for them to disclose abuse. Poor availability of services such as day care centres also make it difficult for women to find help and support. As a result, the abuse often goes undetected and unreported.
To tackle gender based violence and support women with learning disabilities, services need to remove barriers to disclosure and provide better access to information and health and support services. Within NHSGGC, a programme of work is underway to raise awareness about the experience of gender-based violence amongst people with learning disabilities and to build staff confidence and competence in knowing how to identify and respond to this.
Learning Disability & Human Rights
When the behaviour of people with learning disabilities challenges carers and services, complex and competing human rights issues may emerge.
A Human Rights impact assessment was carried out in Netherton Learning Disabilities Unit. This initiative looked at human rights in relation to everyday practices in the Unit.
This work, which included workshops and interviews with staff and patients, highlighted a number of issues around the patients’ rights. For example, some residential units allowed free access to kitchen areas whereas others were much more restrictive. By using human rights guidelines along the PANEL principles set put below, they were able to explore the differences between practices in a patient-centred way.
- Participation – People should be involved in decisions that affect their rights.
- Accountability – There should be monitoring of how people’s rights are being affected, as well as remedies when things go wrong.
- Non-Discrimination – Nobody should be treated unfairly because of their age, gender, ethnicity, disability, religion or belief, sexual orientation or gender identity. People who face the biggest barriers to realising their rights should be prioritised when it comes to taking action.
- Empowerment – Everyone should understand their rights, and be fully supported to take part in developing policy and practices which affect their lives.
- Legality – Approaches should be grounded in the legal rights that are set out in domestic and/or international law.
How we are addressing learning disability issues
NHSGGC is working to ensure that the organisation is addressing health inequality experienced by people with learning disabilities.
Current work includes working with carers and in partnership with Cancer Research UK to improve the uptake of bowel screening by people with learning disabilities. We are also implementing IT improvements which are providing better access to service information and patient data for GPs treating people with learning disabilities.
The Keys to Life (2019) is the Scottish Government strategy to promote inclusion and equality in all areas of life for people with learning disability. NHSGGC is committed to delivering these recommendations which promote a vision and shift towards independent living, employment opportunities, equal access to health services, education that meets the needs of every child and a Scotland with zero tolerance for inequalities.
The Learning Disability Liaison Team supports and enables NHSGGC services to adapt their approaches to meet the needs of people with learning disabilities. The Team supports the system to anticipate and respond to the general medical needs of people with learning disabilities. It also works with local learning disability teams and other agencies to ensure a co-ordinated approach in addressing health inequalities for people with learning disabilities.
For information contact: PCLTAdmin.Generic@ggc.scot.nhs.uk
A Strategy for the Future is NHSGGC’s service redesign for all community based learning disability specialist services. The redesign will enable NHSGGC services to deliver responsive and appropriate healthcare and provide specialist support when required. It aims to give people with learning disabilities more equality and control as well as improving health, wellbeing and safety.
The Scottish Learning Disabilities Observatory has been funded by the Scottish Government to help build understanding of the causes of poor health and health inequalities experienced by people with learning disabilities. The aim of the Observatory is to produce high quality evidence to support learning disability policy and practice and to work in partnership with the NHS, local authorities and Scottish government to improve the information gathered on people with learning disabilities.
Project Search is a targeted programme of employment training and support for young people who have a learning disability (18-24). Participants learn job skills which are transferable and marketable when looking for full time paid work. Students are supported to find work with their job coach either on site with the host business or with another employer. NHSGGC is planning for the 3rd year of this programme following 2 successful years resulting in graduates securing employment within NHSGGC.
As part of A Fairer NHSGGC 2020-24 we have a specific outcome looking at improving service delivery and experience of healthcare appointments for patients with a learning disability. This includes a programme of engagement with patients and third sector organisations to ensure service users are involved in this work.
Website featuring people with learning disabilities and their carer and was written in collaboration with the Rix Centre. It presents the thoughts and feelings of these individuals in their own words, so that doctors and other health professionals can see what people want and how they wish to be involved in their own healthcare.
dd info here…
Support and Resources
- Coming Home – A Report on Out-of-Area Placements and Delayed Discharge for People with Learning Disabilities and Complex Needs
- Death by Indifference
- Health Needs Assessment for People with Learning Disability in Greater Glasgow and Clyde
- Keys to Life
- Learning Disability & Autism
- Project Search
- Specialist Adult Learning Disability Services in NHSGGC – A Strategy for the Future
- The Challenges of Estimating Scotland’s Learning Disabled Population
More information coming soon…
Why Learning Disability matters to Health
More information coming soon…