Have you experienced or seen HIV stigma or discrimination taking place within NHS Greater Glasgow and Clyde (NHSGGC) health services? Have you, or someone else been treated differently, or with a lack of respect because you or they are living with HIV? If you have we want to hear about your experience.
This could be any health service in Greater Glasgow and Clyde, hopefully not related to HIV care, and could have happened any time in the last 3 years.
It doesn’t matter if you don’t remember all the details just tell us as much as you can.
We collect these experiences to help us to work together to ensure people living with HIV are treated with the dignity, compassion and respect that all patients in NHSGGC can expect.
There are several ways to feedback the experience:
1 – Discuss with the service / clinician
We advise that in the first instance, you speak to the person or team responsible if you are not happy with your treatment, or the treatment of someone you care about. For example, this can the nurse in charge of a ward, or the practice manager at a GP surgery.
The peer support engagement manager can support you to do this.
2 – Stigma Reporting via Brownlee
We have developed a stigma reporting form that the peer support engagement manager views so they can support you. They will contact you if you have provided your contact details, however the form can be completed anonymously.
It is important to note that if you do not provide your contact details you will not receive a direct response to the specific issues you raise. However, your comments will still be used to drive forward change.
3 – Anonymously tell your story on Care Opinion
Patients and families can use Care Opinion provide anonymous feedback about their experiences. Incidents are reviewed by the Patient Experience and Public Involvement Team at NHSGGC who will feedback them directly to service managers. You will receive a response from NHS Greater Glasgow and Clyde.
You can watch ‘Care Opinion in 2 minutes‘, a short video explaining how it works.
4 – Feedback to Patient Experience Public Involvement Team (PEPI)
You can give feedback whether good or bad, in a confidential user friendly way to the NHSGGC Patient Experience Public Involvement Team. Simply complete the form with as much information as you can and the PEPI team will make sure this goes to the right services. You will not receive a direct response to the specific issues you raise, but your comments will still be used to drive forward change.
5 – Formal Complaint
The person affected or someone on their behalf can make a formal complaint.
The advice is that you speak to the person or team in the first instance and then escalate if you are not happy with the outcome. The complaints team can help you to do this if you need help. They can give you advice about where to get independent help in making your complaint.